Genetic ALS / FTD Research Education Series: Focus on Progranulin (GRN)

Up to 50,000  healthy people in the United States have pathogenic GRN variants, and about one thousand more have an active FTD diagnosis – what research is available for them to participate in?  It can be hard to understand what research participation is available. It can be even harder to picture what participating in research is like! Hear from experts about what research is available, and from everyday people with the mutation about what participating looks like for them.   

Family Learning Opportunity 

End the Legacy thinks Inherited Diseases are best understood in concert with other family members. To facilitate this, we are offering a chance for a shared meal for families learning together. Apply by emailing info@endthelegacy.org with why you are interested and who you will be viewing with.