Inclusion, Support and Education in Clinical Research

About the Program

Join us for our July ALS Learning Series where we will share information about work being done in the areas of inclusion and education in relation to ALS Clinical Research. We will highlight the Northeast ALS Consortium (NEALS) Clinical Research Learning Institute (CRLI) Research Ambassador Program, Community Education Webinars hosted by NEALS, and educational resources focused on aspects of clinical research and Expanded Access created by the Sean M. Healey and AMG Center for ALS at Mass General Hospital (MGH). Information will be shared by Allison Bulat, Strategic Advisor – Community Engagement for NEALS and MGH, and Judi Carey, Research Access Nurse at MGH.

The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to the Gilbert & Jacqueline Fern Foundation and Mitsubishi Tanabe Pharma America for sponsoring this webinar.

About the Speakers

Allison Bulat: Since losing her husband to ALS in 2016, Allison has committed her time and energy to helping others impacted by the disease. She is currently the Strategic Advisor of Community Engagement for The Sean M Healey and AMG Center at MGH and the NEALS Consortium and is the Co-Chair of the NEALS Patient Education and Advocacy Committee (PEACe), and the NEALS Information and Community Education Workgroup (NICE).

Judith Carey, RN: Judi has 17 years of nursing experience, and an additional 7 years in her current role as Research Access Nurse Manager at the Sean M Healey and AMG Center at MGH where she communicates with people living with ALS about research opportunities, explains specific trials and helps navigate the enrollment process, and collaborates with others to build awareness around clinical research in ALS.