Despite the growing focus on people living with ALS and their adult caregivers, children and youth caregivers, or “young caregivers,” remain the most hidden and least addressed in families with ALS. This is often due to the fear many parents have in how to talk about ALS, what to say and most importantly, when to sayit. Yet, we know that youth are hearing more and accessing more online – thus it is critical for parents and families to start the conversation. This webinar integrates Dr. Kavanaugh’s clinical expertise and many years of research with children and youth in families with neurological disorders, to guide families in engaging with children and youth. Additionally, Dr. Kavanaugh will discuss the several books she has written, using the children’s own words to help guide these conversations.
Registration is now open for our March ALS Learning Series webinar, Talking with Children about ALS, Thursday, March 25, at 12 p.m. CST.