Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life Report Launch Event

Event description:

Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, fatal neurological disease. Individuals affected by ALS include those living with ALS, their caregivers and families, at-risk ALS genetic carriers, and others. Currently no treatments stop or reverse the disease, although various FDA-approved formulations may extend life by several months.

Congress called on the National Academies of Sciences, Engineering, and Medicine to convene a committee to identify and recommend key actions for the public, private, and nonprofit sectors to undertake to make ALS a livable disease within a decade.

Please join us for a webinar to learn about this new National Academies’ report on Tuesday, June 18, 2024 from 11:00 am to 12:00 pm. Members of the report authoring committee will discuss the report’s key messages and recommendations and will answer questions from the audience about the report.

Speakers at this event will include:

• Alan Leshner (Chair), Chief Executive Officer, Emeritus, American Association for the Advancement of Science (retired)

• Suma Babu, Assistant Professor of Neurology, Sean M. Healey & AMG Center for ALS, Massachusetts General Hospital, Harvard Medical School; Co-Director, Neurological Clinical Research Institute, Massachusetts General Hospital

• Joel Shamaskin, Person living with ALS; Professor Emeritus of Medicine, University of Rochester School of Medicine and Dentistry (retired)

Please contact abologna@nas.edu.