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Rare Drug Development Symposium 2023

Join us May 1-3, 2023 in Philadelphia, Pennsylvania for the RARE Drug Development Symposium 2023 The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of…

NEALS Webinar: Tofersen Update

NEALS Webinar: Tofersen Update   Tuesday, May 2, 2023 4:00 PM ET The U.S. Food and Drug Administration (FDA) has granted accelerated approval for tofersen for the treatment of individuals…

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Implications of tofersen for everyone with ALS

Implications of tofersen for everyone with ALS   Tuesday, May 2, 2023 4:45 PM ET The FDA’s recent decision to approve tofersen offers direct benefit to people living with SOD1…

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