Join the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have questions you want to ask during the call, please email info@everythingals.org
As part of our weekly webinar series, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and Expanded Access Protocols (EAPs). Please join us on Thursday, March 14th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a brief presentation and Q&A session about EAPs. We will be joined…
"ALS Treatments: Riluzole, Radicava, and Relyvrio" Presented by the NEALS Information and Community Education (NICE) Working Group Monday, March 18, 2024 at 4:30pm ET Moderated by Senda Ajroud-Driss, this webinar for both clinicians and people living with ALS will review the 3 drugs that are currently FDA-approved in the United States for the general ALS population. Panelists,…
Join the call early! The speaker will start promptly at 4:00 PM PST. The meeting room will be open at 3:30 PM PST. Questions for our Speakers? If you have questions you want to ask during the call, please email info@everythingals.org
Please join us on Thursday, March 21st, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial and answer questions from the audience. This week, we will be joined by guest speaker Karen Parada,…
March 27, 2024 8:00 AM Eastern Time (US and Canada) This webinar will provide information on ALS/MND platform trials. We will hear from HEALEY, MAGNET and SMART. They will update us on their approach, recruitment, trial eligibility and their latest news. Moderator: Dr. Nicholas Cole – Chair of Scientific Advisory Council Panel: Dr.…
Thursday, March 28 - 12 - 1 PM CST About the Program: Join us for our March ALS Learning Series, where team members and people living with ALS will explore the crucial role of collaboration in delivering holistic care. Discover how multidisciplinary clinics can help people living with ALS to live longer and with a…
A new approach to genetic testing for patients and family members at risk of ALS Wednesday, April 3, 2024 | 3:00 - 4:00pm EDT Participate in our upcoming ALS Town Hall on April 3rd to hear how ALS scientists, advocates, innovators, and gene carriers have collaborated to develop the "Light the Way" program. With the…
About the talk: Advanced directives are legal documents that provide instructions for medical care. When living with ALS, it is important to think ahead about what kind of care you may want in the future. Advanced directives are a way to ensure that you, your family, and your ALS care team are all on the same…
Discover Roon: Your Ultimate ALS Resource for Answers to All Your Questions: Wednesday, April 17, 2024 | 3:00 - 4:00pm EDT Join us on April 17, 2024 for an ALS Town Hall led by Roon. Through Roon, a completely free app and website, you can find curated short videos answering thousands of the top questions that…
April 24, 2024 9:00 AM Eastern Time (US and Canada) This webinar will provide tools and recommendations for People living with ALS/MND, their caregivers and youth. We will learn how to take care of our mental health upon diagnosis, how to deal with our emotions like guilt and anxiety. And how to drive motivation and…
Join us for an insightful session with Dr. Ghazala Hayat, MD, FAAN, FANA, FAANEM, as we delve into the prevalence and challenges of constipation in people living with ALS. Dr. Hayat will discuss how constipation might be connected to autonomic system problems in those with ALS, using new research and survey findings.
Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
Join Dr. Terry Heiman-Patterson, Dr. Sabrina Paganoni, and Dr. Kelly Gwathmey's discussion of the importance of multidisciplinary care and the role of the ALS Better Care Act to ensure that quality care at Multidisciplinary Centers is maintained and access to care and trials is increased.
Special Topic: Expanded Access As part of our weekly webinar series, we will dedicate one Thursday each month to a discussion about Expanded Access and Expanded Access Protocols (EAPs) Please join us on Thursday, May 9th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a brief presentation and Q&A session about EAPs. This week, we…
What: Clinical Trials 101 When: May 9, 2024 6pm ET Where: Zoom I AM ALS’ Clinical Trial Community team will be hosting a monthly webinar series to increase people’s understanding of clinical trials in general, as well as ongoing ALS clinical trials and trial finder tools. The first webinar will cover the basics of clinical trials. The following…
Expanded Access 101 - Presented by the Working Group on Compassionate Use & Preapproval Access (CUPA) Date & Time May 15, 2024 12:00 PM Description Our annual introductory webinar covering the basics of the expanded access (compassionate use) pathway of access to investigational medical products
Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
National Institutes of Health (NIH) funded “ALL ALS” consortium is a multi-institutional effort that aims to organize the ALS clinical research landscape in the US. ALL ALS is operating in partnership with several stakeholders to operationalize the recommendations of the Accelerating Access to Critical Therapies for ALS Act (ACT for ALS) Public Private Partnership. ALL…
