Learn How ALS TDI is Partnering with Unite Genomics to Expand the ARC Study Led by ALS TDI and Unite Genomics Wednesday, August 9, 2023 | 3:00 - 4:00pm EDT The ALS Research Collaborative (ARC) has been gathering over eight years of comprehensive data from people with ALS, however, the untapped potential of participants' electronic…
Please join us on Thursday, August 17th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial and answer questions from the audience. This week, we will be joined by ALS advocate Gwen…
About the Program: In this Learning Series webinar, Professor Samar Aoun will share key findings and advice on enabling social networks to support people living with ALS/MND, making palliative care more widely accessible. A particular focus will be on bereavement support and family caregiver support. The Les Turner ALS Foundation is proud to offer this…
Why do some asymptomatic individuals consider ALS genetic testing? Why do some symptomatic individuals consider it? The decision is a personal one, and there are professionals to help us through the process: ALS neurologists and ALS genetic counselors. It can also be helpful to hear from individuals who have reached their own decisions. Join the…
Please join us on Thursday, August 24th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial and answer questions from the audience. This week, we will be joined by Dr. Robert Bowser…
The International Alliance of ALS/MND Associations surveyed the community about the Fundamental Rights of People living with ALS/MND and Caregivers. Learn more about the data, strengths and weaknesses at a global level, the questions raised and the topics that require further attention, and how these compared to our 2021 survey.
Thursday, September 14, 2023, 12:00 p.m - 1:00 p.m CST Join us for our September ALS Learning series with Dr. Edward Kasarskis where he’ll discuss nutrition and hydration, constipation, and bowel management in ALS. The Les Turner ALS Foundation is proud to offer this webinar at no cost to the ALS community. Thank you to…
Please join us on Thursday, September 14th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial and answer questions from the audience. This week, we will be joined by Jennifer DiMartino from ALS…
Please join us on Thursday, September 21st at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial and answer questions from the audience. This week, we will be joined by guest speaker Amanda Lee,…
We will discuss warning signs, how to safeguard, get help, and maintain mental health in people living with ALS/MND and caregivers.
Please join us on Thursday, September 28th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial and answer questions from the audience. This week, Dr. Paganoni will also present updates on the EAP…
“Writing is a form of therapy. Sometimes I wonder how all those who do not write, compose, or paint can manage to escape the madness, melancholia, the panic and fear which is inherent in a human situation.” -Graham Greene I AM ALS’ Write Stuff team requests your presence at their first Literary Salon, held on…
We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. We are excited to host EverythingALS Community Event: Non- Invasive Treatment of ALS Using Motor Neuron Hyperexcitability Suppression - Nader Yaghoubi MD , PhD Wednesday, October 4th, 4:00 PM Pacific Standard Time…
presented by Wendy Dainin Lau, MD Sunday, October 15, 2023 1:00-2:00 p.m. ET Join us for an inspirational talk with the author of the new book, “Inner Practice of Medicine.” In her talk, Wendy will share with us her transition from being an emergency room doctor who had lost her way, to finding the path…
Dear MGH-ALS Community, Darlene Sawicki and Sarah Luppino, Nurse Practitioners at the MGH ALS Multidisciplinary Clinic, will share what they learned at the NEALS 2023 conference with the ALS community. Please join us for this webinar on Wednesday, October 25th at 2 pm ET. Best, Your ALS Team at the Healey & AMG Center at Mass…
Title: Ethical Principles & Informed Consent in Research Date/Time: Thursday, October 26th, 2023 at noon CST Discover the crucial role of informed consent in research at our October ALS Learning Series. Emma Schmidt, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine, will unravel the history of informed consent, guide you…
Heading into the new year, we will be dedicating the second Thursday of each month to a discussion about Expanded Access and EAPs. Please join us on Thursday, November 9th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a brief presentation and Q&A session about EAPs with our guest host, Dr. Suma Babu of Massachusetts General…
Special Topic: Regimen G Drug Science Curious about the science behind Regimen G of the HEALEY ALS Platform Trial? Join us for our weekly webinar on Thursday, November 16th, at 5:00 pm EST (4:00 pm CST/2:00 pm PST) where scientists from Denali Therapeutics will provide an overview about DNL343 and answer your questions. Dr. Sabrina Paganoni of…
