The 5th Annual Gala of Hope Join us for an evening filled with good food, drinks, a silent auction, live entertainment and more! Saturday, April 15, 2023 6:30PM-11:30PM ET Vie by Cescaphe, 600 N Broad St, Philadelphia, PA Guests speakers to include ALS Hope Foundation President, Dr. Terry Heiman-Patterson; representatives from Temple Health; and Joel Goldhirsh and Keynote Speaker Dr.…
Intimacy and ALS Led by members of the ALS community Tuesday, April 18, 2023 | 5:30 - 7:00pm EDT From dating and relationships to sexuality and your sex life, ALS changes a lot. This special 1.5-hour-long ALS Town Hall will attempt to cover the many ways that intimacy can be affected by ALS, while also discussing how…
About the Event Dr. Ajami is an Assistant Professor of Immunology and Behavioral and Systems Neuroscience at OHSU. Her research is focused on how immune cells provokes the pathology in different neurodegenerative diseases. Her work aims at describing immune pathways that leads to the damage to the brain tissue and ultimately discover the molecules that…
Title: ALS Exercise Date: Thu, Apr 20, 2023, 12:00 PM - 1:00 PM CDT Registration link: https://attendee.gotowebinar.com/register/3042676758300304988 About the Program: Many people living with ALS struggle to understand whether it is OK to exercise, what kind of exercise is most beneficial, and whether exercise slows disease progression. Please join as, Hannah Redd PT, DPT, NCS, at…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
2023 ANNUAL MEETING The 75th AAN Annual Meeting will be held from April 22-27, 2023, in a hybrid format offering the option to participate in person in Boston or live online. REGISTER NOW Already registered? Browse Program The Annual Meeting is exciting and diverse, with its seemingly endless choices and learning formats of top-tier education in every topic and specialty…
Hello, As the role of the immune system in neurological disease pathophysiology becomes increasingly apparent, comes the 5th Neuroimmunology Drug Development Summit (April 25-27, Boston), an exclusive forum that will unite established and emerging innovators in the expanding neuroimmunology space, providing actionable takeaways across neuroglia modeling, novel neuroimmunological targeting and neuroinflammatory biomarker discovery. View your copy of the industry-dedicated 2023 program packed with brand-new…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Register Here! (Registration Opens December 1st @ 5:00 PM EDT.) Pricing - $325 - Fundraising option is available (See section below) Tech Sheet- Updated on 11.30.22 Event Schedule - Updated on 11.30.22 (Subject to change) Photos - Luis Vivar (LuVshots) will be onsite to capture complimentary pictures of your car on track. Willow Springs International Raceway…
The Latest News from Massachusetts General Hospital with Dr. Suma Babu, from the MGH Healey Center for ALS Sunday, April 30, 1:00 - 2:00 p.m. ET Join us for an informative talk by Dr. Suma Babu, sharing with us the latest research developments at the Healey Center for ALS, and highlighting some of the important…
Join us May 1-3, 2023 in Philadelphia, Pennsylvania for the RARE Drug Development Symposium 2023 The RARE Drug Development Symposium, hosted by Global Genes and the Orphan Disease Center of the University of Pennsylvania, equips advocates with the knowledge, skills and connections they need to advance therapy development for their communities. RDDS 2023 focuses on…
NEALS Webinar: Tofersen Update Tuesday, May 2, 2023 4:00 PM ET The U.S. Food and Drug Administration (FDA) has granted accelerated approval for tofersen for the treatment of individuals with superoxide dismutase 1 (SOD1) amyotrophic lateral sclerosis (ALS). Join Dr. Timothy Miller for a webinar update following the FDA’s recent announcement moderated by NEALS…
Implications of tofersen for everyone with ALS Tuesday, May 2, 2023 4:45 PM ET The FDA’s recent decision to approve tofersen offers direct benefit to people living with SOD1 ALS, and offers hope to everyone else living with ALS as well. Join the team from The ALS Association to discuss the implications of this…
Meet the bio and tech innovators changing medicine This is biology’s century. Amazing new medicines, technologies, and sources of data appear seemingly every day. Never before has the future of health and medicine been so promising. With this promise comes new hurdles and exciting challenges. Join us at biotech’s event horizon to discuss how to…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Please join us for this year's ALS Clinic Community and Research Day on Saturday, May 6th, 2023 1:00 - 4:00 PM EST. Charlestown Navy Yard 114 16th Street, Building 114, Room D1 A remote zoom option is available, please indicate if you will be joining virtually or in person via the Eventbrite link Join us for…
(Lawrenceburg, Ind.) – The early registration period for the 7th annual Cruisin to a Cure for ALS is nearing its end. Those planning to enter the car show have until Saturday, April 15 to take advantage of the $15 early registration fee. After that date, registration will be accepted the day of the show for…
The Fight ALS Film Fest is open to the public, offering viewing of the documentaries through May by registering at als.net/alsfilmfest. Watch the films online at your convenience and then join their group discussions.
Event Details Metascience 2023 will be an in-person conference on May 9-10, 2023 from 8:30am-5:30pm ET. The registration fee is $85 for students, $150 for non-students. A streaming option will be available for limited sessions (registration coming soon). Additionally, Metascience 2023 will include free virtual symposia pre-conference events in April and the beginning of May for…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Dates: May 11th-13th, 2023 (set-up is May 10th) Location: Washington, DC We’re getting excited about our ALS Awareness Month event this year, and we hope you are, too! Similar to last year, we will be placing 6,000 flags on the National Mall, honoring those living with ALS, those we have lost to ALS, and those…
About the Program: The practice of genetic testing in ALS has been impacted by high patient demand for testing, sponsored testing programs, and a new drug application to the FDA for the first gene-targeted therapy in ALS. However, many challenges exist, including few genetic counselors in ALS clinics, and issues with laboratory methods and reporting. Jennifer…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
