ALS TDI Community Conversations
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview…
30 events found.
Mothers of ALS
Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Free
ALS TDI Town Hall
Learn How ALS TDI is Partnering with Unite Genomics to Expand the ARC Study Led by ALS TDI and Unite Genomics Wednesday, August 9, 2023 | 3:00 - 4:00pm EDT…
Trauma Healing
August 9 7:00pm ET with Julie Brown Yau, PhD Our own Trauma & Spiritual Care Liaison, Julie Yau, Ph.D., SEP, will be hosting a monthly gathering for our community focused…
Accelerating Treatments and Improving Quality of Life: Workshop 1
Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, invariably fatal neurological disease. Individuals impacted by ALS include those living with the disease, their caregivers, and presymptomatic individuals at risk for…
Caregiver to Caregiver
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Paralyzed Veterans of America (PVA) Healthcare Summit + Expo
For ten years Paralyzed Veterans of America has expanded its commitment to spinal cord injury/disease (SCI/D), MS, and ALS patient care through its Summit. Summit is an intensive, three-day learning and sharing…
Chicagoland Support Group
VirtualMeets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Free
Men of ALS
2:00pm ET Enjoy the connection and unique perspective of other men living with ALS, male caregivers of persons living with ALS, sons of those with ALS, or any man touched…
Caregivers-Only Support Group
VirtualThe Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being…
Women of ALS
3:00pm ET Enjoy the connection and unique perspective of other women living with ALS, female caregivers of persons living with ALS, daughters of those with ALS, or any woman touched…
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, August 17th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni,…
Free
ALS Learning Series: Supporting those Caring, Dying and Grieving
About the Program: In this Learning Series webinar, Professor Samar Aoun will share key findings and advice on enabling social networks to support people living with ALS/MND, making palliative care…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Caregiver Only Support Group
VirtualThe Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being…
ALSA Greater Chicago Support Group
Chicagoland: Third Saturday | 10:30 am - 12:00 pm Video Call-In: zoom.us/j/422596742 Call-In: 312-626-6799, Meeting ID: 422596742 For more information or to RSVP: audrey@alsachicago.org
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Free
Falmouth Road Race
Falmouth Road Race Sunday, August 20 Lace up your sneakers and get ready to run the Falmouth Road Race with CCALS on August 20th! The seven mile course kicks off…
ALS Association Greater Sacramento Chapter Transitions Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Free
Accelerating Treatments and Improving Quality of Life: Workshop 2
Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, invariably fatal neurological disease. Individuals impacted by ALS include those living with the disease, their caregivers, and presymptomatic individuals at risk for…
Ask Me Anything ALS: Genetic Testing
Why do some asymptomatic individuals consider ALS genetic testing? Why do some symptomatic individuals consider it? The decision is a personal one, and there are professionals to help us through…
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, August 24th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni,…
Free