August Social Hour
Zoomhttps://iamals.org/action/august-social-hour/ School may be starting again, but we still plan to have some summer fun! Join us for our August Social Hour on August 30th from 6-7 PM ET. For…
Free
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Accelerating Treatments and Improving Quality of Life: Workshop 3
Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, invariably fatal neurological disease. Individuals impacted by ALS include those living with the disease, their caregivers, and presymptomatic individuals at risk for…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Unequal Treatment Revisited: Part 3
On September 6, 2023, the National Academies’ ad hoc Committee on Unequal Treatment Revisited will host the third public workshop in a virtual series examining federal efforts and initiatives aimed at reducing…
Global Fundamental Rights Survey Results
VirtualThe International Alliance of ALS/MND Associations surveyed the community about the Fundamental Rights of People living with ALS/MND and Caregivers. Learn more about the data, strengths and weaknesses at a…
Free
Mothers of ALS
Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Annual Meeting of the American Neurological Association
148th Annual Meeting of the American Neurological Association September 9 - 12, 2023 Opening Symposium: September 9, 2023 Philadelphia Marriott Downtown Philadelphia, Pennsylvania
Hope Walks for ALS Family Day
Temple Ambler 580 Meetinghouse Road, Ambler, PA, United StatesThe ALS Hope Foundation is pleased to present the 16th Annual Hope Walks for ALS on September 10, 2023 at Temple University’s Ambler Campus! This event provides much needed funds…
25.00
ALS TDI Walk for Research
Sunday, September 10, 2023 | 10am Zervas Elementary School 30 Beethoven Ave, Waban, MA 02468 The ALS TDI Walk for Research unites those impacted by ALS while raising crucial funds…
Rare and Orphan Disease Conference
ABOUT THE EVENT Attendees of the 2.5-day conference, including patients, providers, researchers, clinicians, biopharmaceutical companies, regulatory reviewers and scientists, will leave with an understanding of: C-Path's Rare and Orphan Disease…
The International Neuropalliative Care Conference
The International Neuropalliative Care Society invites you to join us in Minneapolis, Minnesota, for INPCS23: Coming Together to Transform Care, which will take place at the Minneapolis Downtown Hilton, September…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Free
Clinical Trials In Rare Diseases
We are pleased to announce the launch of a brand new event: Clinical Trials in Rare Diseases will take place on 13th-14th September 2023 in Princeton! This event will explore…
Trauma Healing
September 13 7:00pm ET with Julie Brown Yau, PhD Our own Trauma & Spiritual Care Liaison, Julie Yau, Ph.D., SEP, will be hosting a monthly gathering for our community focused…
Pan-Asian Consortium for Treatment and Research in ALS
PACTALS represents a large ALS/Motor Neurone Disease (MND) community including the very active research groups in the Asia – Pacific region. The Pan-Asian Consortium for Treatment and Research in ALS…
Nutrition: Journey from Beginning to End
Thursday, September 14, 2023, 12:00 p.m - 1:00 p.m CST Join us for our September ALS Learning series with Dr. Edward Kasarskis where he’ll discuss nutrition and hydration, constipation, and…
Free
Caregiver to Caregiver
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate…
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, September 14th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni,…
Free
Go On, Be Brave Screening: BETHESDA, MD
Location: Landmark Bethesda Row, Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time - a diagnosis of ALS and an attempt…
Go On, Be Brave Screening: RALEIGH, NC
Location: Cinemark Bistro ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time - a diagnosis of ALS and an attempt at the impossible - to…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Caregiver Only Support Group
VirtualThe Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being…
ALSA Greater Chicago Support Group
Chicagoland: Third Saturday | 10:30 am - 12:00 pm Video Call-In: zoom.us/j/422596742 Call-In: 312-626-6799, Meeting ID: 422596742 For more information or to RSVP: audrey@alsachicago.org
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Free
Go On, Be Brave Screening: RALEIGH, NC
Location: Cinemark Bistro, Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time - a diagnosis of ALS and an attempt at…
Advancing Endpoints and Digital Health Technologies for Neurological and Neuromuscular Disorders: Workshop 1
On September 18th, September 29th, and October 10th, from 10:30 AM – 5:30 PM ET, NIH will be hosting a virtual workshop series: “Advancing Endpoints and Digital Health Technologies for…