The International Neuropalliative Care Conference

The International Neuropalliative Care Society invites you to join us in Minneapolis, Minnesota, for INPCS23: Coming Together to Transform Care, which will take place at the Minneapolis Downtown Hilton, September…

Clinical Trials In Rare Diseases

We are pleased to announce the launch of a brand new event: Clinical Trials in Rare Diseases will take place on 13th-14th September 2023 in Princeton! This event will explore…

Pan-Asian Consortium for Treatment and Research in ALS

PACTALS represents a large ALS/Motor Neurone Disease (MND) community including the very active research groups in the Asia – Pacific region. The Pan-Asian Consortium for Treatment and Research in ALS…

Nutrition: Journey from Beginning to End

Thursday, September 14, 2023, 12:00 p.m - 1:00 p.m CST Join us for our September ALS Learning series with Dr. Edward Kasarskis where he’ll discuss nutrition and hydration, constipation, and…

Free

Caregiver to Caregiver

3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate…

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 14th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni,…

Free

Go On, Be Brave Screening: BETHESDA, MD

Location: Landmark Bethesda Row, Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time - a diagnosis of ALS and an attempt…

Go On, Be Brave Screening: RALEIGH, NC

Location: Cinemark Bistro ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time - a diagnosis of ALS and an attempt at the impossible - to…

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

Caregiver Only Support Group

Virtual

The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being…

ALSA Greater Chicago Support Group

Chicagoland: Third Saturday | 10:30 am - 12:00 pm Video Call-In: zoom.us/j/422596742 Call-In: 312-626-6799, Meeting ID: 422596742 For more information or to RSVP: audrey@alsachicago.org

Go On, Be Brave Screening: RALEIGH, NC

Location: Cinemark Bistro, Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time - a diagnosis of ALS and an attempt at…

Chicagoland Support Group

Virtual

Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be…

ALS TDI Community Conversations

Virtual

Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview…

Free

Men of ALS

2:00pm ET Enjoy the connection and unique perspective of other men living with ALS, male caregivers of persons living with ALS, sons of those with ALS, or any man touched…

Caregivers-Only Support Group

Virtual

The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being…

Women of ALS

3:00pm ET Enjoy the connection and unique perspective of other women living with ALS, female caregivers of persons living with ALS, daughters of those with ALS, or any woman touched…

Weekly HEALEY ALS Platform Trial Webinar

Virtual

Please join us on Thursday, September 21st at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni,…

Free

Go On, Be Brave Screening: LAKEMOOR, IL

Location: McHenry Outdoor Theater ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time - a diagnosis of ALS and an attempt at the impossible -…

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

Go On, Be Brave Screening: BRECKENRIDGE, CO

Location: Breck Film Fest, Riverwalk. Meet the Filmmakers ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time - a diagnosis of ALS and an attempt…

22nd Annual ALS Walk for Life

Soldier Field 1410 S Museum Campus Drive, Chicago, IL, United States

22nd Annual ALS Walk for Life Kickoff We are thrilled to announce the upcoming 2023 ALS Walk for Life, the largest ALS gathering in the Midwest! This highly anticipated event brings together thousands…

Towpath Trot – 5k/Fun Run

Join John and Tracy Mulligan for a fun 5K run on the C+O Canal Towpath in Georgetown, Washington DC on September 23rd. All proceeds from the registration fees go directly…

Living After Loss (Bereavement Group)

Virtual

An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to…

Voce Dei Pazienti e Caregivers Coinvolgimento e Collaborazione nel Settore Sanitario

Sala Margherita, Hotel Lombardia viale Lombardia 74, Milan, Italy

Questa conferenza riunirà pazienti, organizzazioni di pazienti, industrie (farmaceutiche, biotecnologiche, mediche) e qualsiasi altra parte interessata al coinvolgimento dei pazienti nell'assistenza sanitaria. L’obiettivo dell’evento è quello di ampilare l’interazione diretta…

Free