Voce Dei Pazienti e Caregivers Coinvolgimento e Collaborazione nel Settore Sanitario

Sala Margherita, Hotel Lombardia viale Lombardia 74, Milan, Italy

Questa conferenza riunirà pazienti, organizzazioni di pazienti, industrie (farmaceutiche, biotecnologiche, mediche) e qualsiasi altra parte interessata al coinvolgimento dei pazienti nell'assistenza sanitaria. L’obiettivo dell’evento è quello di ampilare l’interazione diretta…

Free

ALS TDI Town Hall: Meet Your ALS Orgs!

Virtual

Meet Your ALS Orgs Presentations from Hope Loves Company, MAC Angels, and Roon Tuesday, September 26, 2023 | 3:00 - 4:00pm EDT You are invited to attend our fourth event…

Free

NurOwn AdComm Watch Event

Zoom

On September 27, 2023, join ALS community members watching the U.S. Food and Drug Administration’s (FDA) AdComm on BrainStorm’s NurOwn. Sign up by filling out this form. Now what’s an…

Veterans Living with ALS

September 28 2:00pm ET Enjoy the connection and unique perspective of other Veterans living with ALS. We will gather in council to share our experiences with the broad motivation to…

September Social Hour

Zoom

***If you've signed up already in 2023, there's no need to do it again. You will be added to the calendar invite.*** The seasons may change, but Social Hour remains!…

Free

Go On, Be Brave Screening: CHARLESTON, SC

Location: College of Charleston Sottile Theatre, Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time - a diagnosis of ALS and…

Event Series Beyond ALS

Beyond ALS

6:30pm ET Join a welcoming group of men and women who have lost a loved one to ALS. Share openly with others who are rebuilding their lives after profound loss.…

Event Series ALS Office Hours

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

Soiree with O.J.

It's fifteen years since we started the Brigance Brigade Foundation which has helped hundreds of ALS patients and their caregivers.  Equip.  Encourage.  Empower.  That's our motto, and it's one that we hope…

Literary Salon

Zoom

“Writing is a form of therapy. Sometimes I wonder how all those who do not write, compose, or paint can manage to escape the madness, melancholia, the panic and fear…

Free

22nd Annual NEALS Meeting

2023 Annual NEALS Meeting The 22nd Annual NEALS Meeting will be held October 4 - 6, 2023. Please check back in late Spring for additional details, including information on virtual…

Go On Be Brave Screening: University Park, IL

Governors State University Center for Performing Arts 1 University Pkwy, University Park, IL 60484 1 University Pkwy, University Park, IL 60484, University Park, IL, United States

Location: Governors State University Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt…

5.00
Event Series Mothers of ALS

Mothers of ALS

Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this…

Go On Be Brave: Glen Ellyn, IL

Grace Lutheran Church ​493 Forest Ave. Glen Ellyn IL 60137 493 Forest Ave., Glen Ellyn, IL, United States

Location: Grace Lutheran Glen Ellyn Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an…

15.00
Event Series ALS Office Hours

ALS Office Hours

Virtual

Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…

Go On Be Brave Screening: Chicago, IL

ShowPlace ICON Theatre & Kitchen at Roosevelt Collection 1011 S Delano Ct Chicago IL, 60605 1011 S Delano Ct., Chicago, IL, United States

Location: ShowPlace ICON Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at…

10.00

Go On Be Brave Screening: Oak Park, IL

Location: Governors State University Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt…

Go On Be Brave Screening: Buffalo, NY

Location: BUFFALO INTERNATIONAL FILM FESTIVAL North Park Theater ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt…

3rd Annual Cobbler Classic Pro Am Golf Tournament

Steve Madden Presents His 3rd Annual Fall Cobbler Classic Pro-Am Golf Tournament and Charity Fundraiser for I AM ALS Join Steve and friends at beautiful Engineers Country Club in Roslyn,…