Please join us on Thursday, May 5th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Peter Foss, president of ALS Finding a Cure. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and…
A Phase 2a Study of TPN-101 in Patients with C9ORF72 ALS/FTD (Amyotrophic Lateral Sclerosis and/or Frontotemporal Dementia) Merit Cudkowicz, MD, MSc Sean M. Healey & AMG Center for ALS at Mass General Hospital Friday, May 6, 2022 10:30 - 11:30 AM EDT The purpose of this webinar is to provide an overview of a new…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
About the Event Michael Snyder, Ph.D. Title: Moving from a few genes to a genetic architecture for ALS and the insights it provides Michael Snyder, Ph.D., Professor in Genetics Stanford University School of Medicine Bio: 977 B.A, Chemistry and Biology, University of Rochester, NY 1978-1982 Ph.D. California Institute of Technology, CA Advisor: Dr. Norman Davidson…
About the Program: This webinar will guide people living with ALS and their loved ones through easy-to-understand actionable steps for securing a financial future and optimizing health care. A diagnosis of ALS makes planning for the future more important than ever. These discussions are not easy, but taking the time to gather information and think…
The Southwest Florida Walk to Defeat ALS® is the #1 event to raise awareness and funds for the ALS community in Southwest Florida. To participate in the 2022 Southwest Florida Walk to Defeat ALS®, go here.
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Please join us on Thursday, May 19th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial and a special introduction to Dr. Nadia Sethi, a member of our Patient Advisory Committee. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform…
The Lew Blond Memorial 5K Run/Walk is held to honor Lew Blond, a Maple School teacher who passed away from Lou Gehrig’s Disease (ALS) in February 2000. He was an exceptional and dedicated educator of the applied arts and was revered and cherished by his students, his colleagues and the parents of the children he…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
That’s right, our annual Hope Through Caring Gala is just over a month away. If you’re just as excited as we are, purchase your tickets now! We have plenty of ticket options for anyone looking to be a part of this memorable evening. Whether you’re looking to attend in-person, or you’re outside the Chicagoland area, there’s a…
Advance Promising Targets for Familial & Sporadic Disease, Validate Sensitive Markers of Disease Progression & Enhance Innovative Trial Design to Transform ALS Drug Development Meaningful progress in establishing causative genetic mutations and environmental factors implicated in ALS disease progression and advances in validating emerging biomarkers to evaluate treatment response has meant that the landscape for…
In recognition of ALS Awareness Month, the Dotdash Meredith DEI Team is partnering with Verywell Health, the ALS Association and Everything ALS to discuss the challenges of ALS with a focus on underrepresented communities. Join us on Tuesday, May 24, 3 p.m. ET. Understanding ALS-Link-FINAL Dr. Jessica Shepherd Chief Medical Officer @Verywell Health Moderator Deb Fabricatore…
Register to Attend a Community Discussion on ALS Research and Trials On Tuesday, May 24th, join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for a new virtual discussion series – ALS TDI Community Conversations. Through these conversations, Nadia will provide information on research and clinical trials while…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
About the Event In this webinar our speaker, MATTHEW S. MILLER PhD, Associate Professor, Biochemistry & Biomedical Sciences talks about Immunity, Virus, and the Role of Inflammation in ALS. We look forward to seeing you there! To Register: EverythingALS.org/research Questions: Info@EverythingALS.org RSVP
Please join us on Thursday, May 26th at 5:00 pm EST (4:00pm CST/2:00pm PST) for our weekly Q&A webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience.
Please join us on Thursday, June 2nd at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speaker Daniel…
The event will consist of 20 teams, so get your Captain and put your 8 player team together - (4 women and 4 men). There will be 3 divisions - ADVANCED (4.5-5.0), INTERMEDIATE (3.5-4.5) AND BEGINNER (BELOW 3.5) Games will be played to 15 points - win by 1. Each team will play a minimum…
Discussion on Supplement Use for People with ALS Led by Dr. Jinsy Andrews and Dr. Merit Cudkowicz Wednesday, June 8, 2022 | 3:00 - 4:30pm EDT On June 8th, join us for a discussion on supplement and off-label medication use for people living with ALS, led by Dr. Jinsy Andrews, co-chair of NEALS and Director of Neuromuscular…
Please join us on Thursday, June 9th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speakers Honora…
You are invited to attend our first event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and the NEALS Patient Education & Advocacy Committee on this new series – creating a platform for the ALS community to meet some of the key people…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Join the Conversation on June 14 Overview of research at ALS TDI and current clinical trials. Tuesday, June 14, 2022 | 5:00 to 6:00pm EDT ET Led by Dr. Nadia Sethi Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
