I AM ALS Lou Gehrig Day Team
ZoomThe Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up.
Free
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I AM ALS Many Shades of ALS Team Meeting
ZoomThe Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by ALS. Click the link to sign up.
Free
I AM ALS Community Outreach Team
ZoomThe Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
Free
I AM ALS Legislative Affairs Team
ZoomThe Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those…
Free
Advances in Cough and Secretion Management in ALS
VirtualWednesday, July 31st, 2024 4:00 - 5:00 PM ET Webinar II of the Respiratory Care in ALS webinar series presented by the NEALS Respiratory Care and Ventilation Committee. Advances in Cough and Secretion Management in ALS, will focus on use of the validated Oral Secretion Scale (OSS) for predicting tolerance of noninvasive ventilation and management of secretions. Indications…
I AM ALS Youth Lou Gehrig Day Team
ZoomThe Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Click the link to join.
Free
I AM ALS The Write Stuff Team Meeting
ZoomThe Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. Click the link to join.
Free
I AM ALS Clinical Trials Team Meeting
ZoomThe Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding clinical trials to the ALS community. Click the link to join.
Free
Mothers of ALS
Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this unique opportunity to share your mother-heart with others. Register
ALS TDI Town Hall: ARC Study
VirtualShare Your Experience and ALS Advance Research – Join the ARC Study Led by Alan Premasiri, Sr. Manager, Clinical Operations at ALS TDI Thursday, August 1, 2024 | 3:00 - 4:00pm EDT Join us for a virtual discussion about the ALS Research Collaborative (ARC) study! This innovative research initiative allows people with ALS to share their unique…
Free
I AM ALS Familial Team Meeting
ZoomThe Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link to sign up.
Free
I AM ALS Support Group for people living with ALS
ZoomI AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Every Tuesday from 12-1 p.m. CST. This group supports all people living with ALS…
I AM ALS Lou Gehrig Day Team
ZoomThe Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up.
Free
I AM ALS Support Group for people who have lost a loved one to ALS
ZoomI AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' First Wednesday of every month from 12-1 p.m. CST: People who have lost a loved…
I AM ALS Many Shades of ALS Team Meeting
ZoomThe Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by ALS. Click the link to sign up.
Free
I AM ALS Community Outreach Team
ZoomThe Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
Free
I AM ALS Legislative Affairs Team
ZoomThe Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those…
Free
Remote Respiratory Monitoring for PALS: Implementation in ALS Multidisciplinary Clinic
VirtualDon't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
Free
Matt Creen Invitational
Green Garden Country Club 9511 W. Manhattan - Monee Road, Frankfort, IL, United StatesMatt Creen Invitational is a golf outing and dinner to benefit the Les Turner ALS Foundation, including raffles, live music, and other fun stuff.
100 – 800
I AM ALS Youth Lou Gehrig Day Team
ZoomThe Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Click the link to join.
Free
I AM ALS The Write Stuff Team Meeting
ZoomThe Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. Click the link to join.
Free
I AM ALS Clinical Trials Team Meeting
ZoomThe Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding clinical trials to the ALS community. Click the link to join.
Free
Caregiver to Caregiver
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate understanding of ALS and share your unique point of view as a caregiver. It is truly a wonderful experience to sit in council with ALS…
Weekly HEALEY ALS Platform Trial Webinar: EAP
VirtualNamita Goyal, MD Dr. Namita Goyal is the director of the UCI Health ALS & Neuromuscular Center. With support from the axeALS Foundation and the Sean M. Healey & AMG Center for ALS at Mass General, Dr. Goyal led efforts to establish an EAP program at UCI Health in September 2023. Amanda Stevens Amanda and…
Free
I AM ALS Veterans Team Meeting
ZoomThe Veterans team seeks to raise awareness about veteran-specific ALS issues, educate the public about ALS and veterans, connect veterans with resources to improve their quality of ALS care, and accelerate the development of and access to treatments and cures. Click the link to sign up.
Free
I AM ALS Familial Team Meeting
ZoomThe Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link to sign up.
Free
I AM ALS Support Group for people living with ALS
ZoomI AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Every Tuesday from 12-1 p.m. CST. This group supports all people living with ALS…
I AM ALS Lou Gehrig Day Team
ZoomThe Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up.
Free
Himalaya Trial Update Webinar
VirtualJoin us for an insightful update on the Himalaya Trial presented by Nazem Atassi and Merit Cudkowicz. During this webinar, Dr. Atassi and Dr. Cudkowicz will present the results of the Phase 2 trial in ALS and answer questions. Don't miss this opportunity to learn about the latest developments in ALS research from leading experts…