Don't miss this opportunity to hear first hand from these extraordinary individuals as they share their experiences, insights, and aspirations in the pursuit of advancing ALS research. Together, let's harness the power of citizen research to make a lasting impact on the future of ALS treatments and support.
Join the I AM ALS Lou Gehrig Day Team on May 1, 2024 at 7pm as they kick off ALS Awareness Month by hosting a virtual book talk with Jonathan Eig (https://www.jonathaneig.com), renowned journalist and biographer about his book Luckiest Man: The Life and Death of Lou Gehrig, with special guest interviewer John Driskell Hopkins! The event will take place on May…
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Click the link to join.
The Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. Click the link to join.
The Clinical Trials Team partners with researchers, government agencies, and drug sponsors to ensure access, efficiency and humaneness of ALS therapy development and approval. It collects and distributes information regarding clinical trials to the ALS community. Click the link to join.
Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this unique opportunity to share your mother-heart with others. Register
Join us in LA on May 4th! This is one amazing event you won't want to miss! This once in a lifetime event, hosted by Nancy Lee Grahn of ABC's General Hospital will be star-studded with daytime's most cherished actors! Find out more via the link below.
Do you know Lou? Lou Gehrig is one of the greatest baseball players of all time. So much so that Major League Baseball designated June 2nd Lou Gehrig Day. But did you know his career ended earlier due to a neurological disease that caused his muscles to stop working? Lou Gehrig had Amyotrophic Lateral Sclerosis…
The Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link to sign up.
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny of SunnyStrong. Thank you to our incredible sponsor Mitsubishi Tanabe Pharma America for supporting this program!…
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Every Tuesday from 12-1 p.m. CST. This group supports all people living with ALS…
The Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate Lou's legacy, and unite the ALS community for a memorable day. Click the link to sign up.
I AM ALS offers weekly virtual support groups for people who are living with and impacted by ALS. Each group provides a space for people to connect with others who can relate to what they’re going through, and receive emotional support.' Second Wednesday of every month from 12-1 p.m. CST is for people who are…
The Many Shades of ALS Team seeks to bring attention to and provide resources for the mental, physical and social health of people of color living with and impacted by ALS. Click the link to sign up.
The Community Outreach Team seeks to engage, educate and empower themselves and others for the purpose of creating better care, treatments and cures for ALS. Click the link to join.
Hoping to live stream on Mike Quigley's YouTube Channel https://www.youtube.com/@RepMikeQuigley
The Legislative Affairs Team seeks to empower and support the ALS community in their legislative advocacy efforts. They strive to build a team of passionate revolutionaries who together will develop meaningful relationships with federal legislators to secure public policies that will expand access to clinical trials, accelerate ALS therapies, eliminate access barriers, and support those…
Everything ALS invites you to join them and other people with ALS and families to engage in a positive setting of collaboration and community.
Join Dr. Terry Heiman-Patterson, Dr. Sabrina Paganoni, and Dr. Kelly Gwathmey's discussion of the importance of multidisciplinary care and the role of the ALS Better Care Act to ensure that quality care at Multidisciplinary Centers is maintained and access to care and trials is increased.
The Youth Lou Gehrig Day Team seeks to raise ALS Awareness, promote Lou Gehrig Day, celebrate his legacy, engage and inspire millions of kids to advocate on behalf of people living with ALS, and unite the ALS community for a memorable day. Click the link to join.
The Write Stuff Team seeks to empower and embrace all perspectives as they share their stories through writing with the intent of educating others and raising awareness of ALS both within and outside of the ALS community. Click the link to join.
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate understanding of ALS and share your unique point of view as a caregiver. It is truly a wonderful experience to sit in council with ALS…
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series,…
Special Topic: Expanded Access As part of our weekly webinar series, we will dedicate one Thursday each month to a discussion about Expanded Access and Expanded Access Protocols (EAPs) Please join us on Thursday, May 9th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a brief presentation and Q&A session about EAPs. This week, we…
What: Clinical Trials 101 When: May 9, 2024 6pm ET Where: Zoom I AM ALS’ Clinical Trial Community team will be hosting a monthly webinar series to increase people’s understanding of clinical trials in general, as well as ongoing ALS clinical trials and trial finder tools. The first webinar will cover the basics of clinical trials. The following…
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny of SunnyStrong. Thank you to our incredible sponsor Mitsubishi Tanabe Pharma America for supporting this program!…
The Veterans team seeks to raise awareness about veteran-specific ALS issues, educate the public about ALS and veterans, connect veterans with resources to improve their quality of ALS care, and accelerate the development of and access to treatments and cures. Click the link to sign up.
The Familial Team seeks to raise awareness of familial ALS/FTD and engage, empower, and support the familial ALS community and advocate for them with ALS/FTD researchers and funders. Click the link to sign up.
One of the numerous and devastating challenges associated with ALS is the loss of one’s ability to communicate. This can lead to feelings of isolation, disempowerment, and profound devastation. It changes the world of the person living with ALS, their loved ones, and others who play a role in their life. Luckily, technological breakthroughs provide…
