Metascience 2023 Conference
Event Details Metascience 2023 will be an in-person conference on May 9-10, 2023 from 8:30am-5:30pm ET. The registration fee is $85 for students, $150 for non-students. A streaming option will be available for limited sessions (registration coming soon). Additionally, Metascience 2023 will include free virtual symposia pre-conference events in April and the beginning of May for…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
The #ALSinDC Flag Event
Dates: May 11th-13th, 2023 (set-up is May 10th) Location: Washington, DC We’re getting excited about our ALS Awareness Month event this year, and we hope you are, too! Similar to last year, we will be placing 6,000 flags on the National Mall, honoring those living with ALS, those we have lost to ALS, and those…
Evidence-Based Consensus Guidelines for Genetic Counseling and Testing in ALS
About the Program: The practice of genetic testing in ALS has been impacted by high patient demand for testing, sponsored testing programs, and a new drug application to the FDA for the first gene-targeted therapy in ALS. However, many challenges exist, including few genetic counselors in ALS clinics, and issues with laboratory methods and reporting. Jennifer…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
The Fight ALS Film Fest: It’s Not Yet Dark, with a discussion moderated by Ruth Fitzmaurice
VirtualThe Fight ALS Film Fest is open to the public, offering viewing of the documentaries through May by registering at als.net/alsfilmfest. Watch the films online at your convenience and then join their group discussions.
ALS Drug Development Summit (2nd Annual)
Revolutionizing ALS Models, Novel Biomarkers & Clinical Endpoints to Accelerate Future ALS Approvals Following the approval of Amylyx’s Relyvrio and the upcoming Biogen/Ionis Tofersen FDA decision on the basis of neurofilament light chain as a surrogate endpoint, the ALS drug development landscape is gaining momentum and positivity. With early indications of potential regulatory firsts, booming…
Accelerating Health Equity Conference
A time to connect and collaborate to advance community health, well-being, and equity. Long-standing health care disparities and inequities still persist. Systemic drivers such as structural racism and economic disadvantages have resulted in disproportionate health outcomes across different patient populations. Now is the time to evaluate how far we have come in closing existing gaps,…
Amyotrophic Lateral Sclerosis: Accelerating Treatments and Improving Quality of Life- Meeting #2
Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, invariably fatal neurological disease that attacks motor neurons and leads to their gradual degeneration and death, often within two years of onset. Currently, no treatments exist to stop or reverse the disease. This is the second meeting of a study committee mandated by Congress and sponsored by the National…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
CCALS Stroll & Roll
CCALS Stroll & Roll Saturday, May 20 Join us for this scenic two-mile walk along the Cape Cod canal. Stroll & Roll is family-friendly, dog-friendly, and wheelchair accessible. Sign up to enjoy food trucks, inflatables, face painting, craft vendors, and live music with us on May 20, 2023! The walk will begin and end at Buzzards Bay Park at 90 Main Street in Buzzards Bay,…
19th Annual Research Update and Awards Luncheon
You are invited to the Research Update and Awards Luncheon. Join us as we hear from our guest lecturer, Dr. Matthew Harms, learn about the work of the ALS Hope Foundation, and thank our supporters! Sunday, May 21, 2023 11:00AM - 2:30PM ET The Inn at Villanova, 601 County Line Road, Wayne, PA 19087 This is…
Calling All First Responders: Come Learn About ALS
When an emergency strikes, we want you, our first responders, on the scene. But when that emergency involves someone living with ALS, things can be more complicated. The best way to learn about these unique needs is to hear about them from people living with ALS themselves, as well as their caregivers and loved ones.…
ALS Association Greater Sacramento Chapter Transitions Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
The Fight ALS Film Fest: From the Passenger Seat, with a discussion led by Gabe Rovick and Cindy Wyman
VirtualThe Fight ALS Film Fest is open to the public, offering viewing of the documentaries through May by registering at als.net/alsfilmfest. Watch the films online at your convenience and then join their group discussions.
From the Passenger Seat is an educational adventure film that explores one man's exceptional life, a heroic two-year battle with ALS, and an epic farewell road trip. Through a creative lens, F4D Studio shows what life can be when it is lived with purpose, immobile vigor, and an unquenchable thirst for experiences. This film can be watched at https://fromthepassengerseatfilm.com/
What’s in a gene? And introduction to Familial ALS
An ALS diagnosis often comes out of nowhere. Most people do not even know what ALS is until they are diagnosed with it. Unfortunately, there are families where ALS is very well understood and an ALS diagnosis is common. People with familial ALS often have several known relatives who have lived and, in most cases,…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Maintaining My Independence
VirtualA panel with occupational therapists in ALS/MND providing recommendations for PALS at different stages of their journey. Tips, considerations, and what can be done at home.
The Fight ALS Film Fest: Matter of Mind: My ALS, with a discussion moderated by Michele Stellato and Charlie Wren
VirtualThe Fight ALS Film Fest is open to the public, offering viewing of the documentaries through May by registering at als.net/alsfilmfest. Watch the films online at your convenience and then join their group discussions.
I AM ALS Social Hour
Virtual***If you’ve signed up already in 2023, there’s no need to do it again. You will be added to the calendar invite.*** May has arrived, and it brings with it another social hour! For those who may not know, social hour is an hour-long meeting where members of the community can come to hang out,…