Trauma Healing
August 9 7:00pm ET with Julie Brown Yau, PhD Our own Trauma & Spiritual Care Liaison, Julie Yau, Ph.D., SEP, will be hosting a monthly gathering for our community focused on trauma awareness and healing. CCALS has long recognized how traumatic an ALS diagnosis is, and the continuing challenges and trauma that can arise while…
Accelerating Treatments and Improving Quality of Life: Workshop 1
Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, invariably fatal neurological disease. Individuals impacted by ALS include those living with the disease, their caregivers, and presymptomatic individuals at risk for developing ALS. Currently no treatments are available to stop or reverse the disease, although various FDA-approved formulations may extend life by several months The National…
Caregiver to Caregiver
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate understanding of ALS and share your unique point of view as a caregiver. It is truly a wonderful experience to sit in council with ALS…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Paralyzed Veterans of America (PVA) Healthcare Summit + Expo
For ten years Paralyzed Veterans of America has expanded its commitment to spinal cord injury/disease (SCI/D), MS, and ALS patient care through its Summit. Summit is an intensive, three-day learning and sharing experience that provides the most updated and vital information, state of the art research, and emerging science, which can be put to immediate use in…
Chicagoland Support Group
VirtualMeets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Men of ALS
2:00pm ET Enjoy the connection and unique perspective of other men living with ALS, male caregivers of persons living with ALS, sons of those with ALS, or any man touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS…
Caregivers-Only Support Group
VirtualThe Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
Women of ALS
3:00pm ET Enjoy the connection and unique perspective of other women living with ALS, female caregivers of persons living with ALS, daughters of those with ALS, or any woman touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS…
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, August 17th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial and answer questions from the audience. This week, we will be joined by ALS advocate Gwen…
ALS Learning Series: Supporting those Caring, Dying and Grieving
About the Program: In this Learning Series webinar, Professor Samar Aoun will share key findings and advice on enabling social networks to support people living with ALS/MND, making palliative care more widely accessible. A particular focus will be on bereavement support and family caregiver support. The Les Turner ALS Foundation is proud to offer this…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Caregiver Only Support Group
VirtualThe Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
ALSA Greater Chicago Support Group
Chicagoland: Third Saturday | 10:30 am - 12:00 pm Video Call-In: zoom.us/j/422596742 Call-In: 312-626-6799, Meeting ID: 422596742 For more information or to RSVP: audrey@alsachicago.org
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Falmouth Road Race
Falmouth Road Race Sunday, August 20 Lace up your sneakers and get ready to run the Falmouth Road Race with CCALS on August 20th! The seven mile course kicks off from Woods Hole and winds through the woods and by the beaches of beautiful Falmouth, Massachusetts. CCALS runners can attend the race in person, or…
ALS Association Greater Sacramento Chapter Transitions Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Accelerating Treatments and Improving Quality of Life: Workshop 2
Amyotrophic lateral sclerosis (ALS) is a rapidly progressive, invariably fatal neurological disease. Individuals impacted by ALS include those living with the disease, their caregivers, and presymptomatic individuals at risk for developing ALS. Currently no treatments are available to stop or reverse the disease, although various FDA-approved formulations may extend life by several months The National…
Ask Me Anything ALS: Genetic Testing
Why do some asymptomatic individuals consider ALS genetic testing? Why do some symptomatic individuals consider it? The decision is a personal one, and there are professionals to help us through the process: ALS neurologists and ALS genetic counselors. It can also be helpful to hear from individuals who have reached their own decisions. Join the…
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, August 24th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Merit Cudkowicz, MD, MSc, and Sabrina Paganoni, MD, PhD, will present updates on the Platform Trial and answer questions from the audience. This week, we will be joined by Dr. Robert Bowser…
Beyond ALS
6:30pm ET Join a welcoming group of men and women who have lost a loved one to ALS. Share openly with others who are rebuilding their lives after profound loss. This interactive gathering will highlight where we are now and what may feel different: our identity, our values, our approach to spirituality, and more. We…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Shady Strong- ALS Awareness Backyard BBQ Competition & Music Festival
Rawley Park 13334 Rt. 38, Richford, NY, United States
Living After Loss (Bereavement Group)
VirtualAn open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will…
August Social Hour
Zoomhttps://iamals.org/action/august-social-hour/ School may be starting again, but we still plan to have some summer fun! Join us for our August Social Hour on August 30th from 6-7 PM ET. For those who may not know, social hour is an hour-long meeting where members of the community can come to hang out, chat, and spend time…