The Lew Blond Memorial 5K Run/Walk is held to honor Lew Blond, a Maple School teacher who passed away from Lou Gehrig’s Disease (ALS) in February 2000. He was an exceptional and dedicated educator of the applied arts and was revered and cherished by his students, his colleagues and the parents of the children he…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
That’s right, our annual Hope Through Caring Gala is just over a month away. If you’re just as excited as we are, purchase your tickets now! We have plenty of ticket options for anyone looking to be a part of this memorable evening. Whether you’re looking to attend in-person, or you’re outside the Chicagoland area, there’s a…
Advance Promising Targets for Familial & Sporadic Disease, Validate Sensitive Markers of Disease Progression & Enhance Innovative Trial Design to Transform ALS Drug Development Meaningful progress in establishing causative genetic mutations and environmental factors implicated in ALS disease progression and advances in validating emerging biomarkers to evaluate treatment response has meant that the landscape for…
In recognition of ALS Awareness Month, the Dotdash Meredith DEI Team is partnering with Verywell Health, the ALS Association and Everything ALS to discuss the challenges of ALS with a focus on underrepresented communities. Join us on Tuesday, May 24, 3 p.m. ET. Understanding ALS-Link-FINAL Dr. Jessica Shepherd Chief Medical Officer @Verywell Health Moderator Deb Fabricatore…
Register to Attend a Community Discussion on ALS Research and Trials On Tuesday, May 24th, join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for a new virtual discussion series – ALS TDI Community Conversations. Through these conversations, Nadia will provide information on research and clinical trials while…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
About the Event In this webinar our speaker, MATTHEW S. MILLER PhD, Associate Professor, Biochemistry & Biomedical Sciences talks about Immunity, Virus, and the Role of Inflammation in ALS. We look forward to seeing you there! To Register: EverythingALS.org/research Questions: Info@EverythingALS.org RSVP
Please join us on Thursday, May 26th at 5:00 pm EST (4:00pm CST/2:00pm PST) for our weekly Q&A webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience.
Please join us on Thursday, June 2nd at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speaker Daniel…
The event will consist of 20 teams, so get your Captain and put your 8 player team together - (4 women and 4 men). There will be 3 divisions - ADVANCED (4.5-5.0), INTERMEDIATE (3.5-4.5) AND BEGINNER (BELOW 3.5) Games will be played to 15 points - win by 1. Each team will play a minimum…
Discussion on Supplement Use for People with ALS Led by Dr. Jinsy Andrews and Dr. Merit Cudkowicz Wednesday, June 8, 2022 | 3:00 - 4:30pm EDT On June 8th, join us for a discussion on supplement and off-label medication use for people living with ALS, led by Dr. Jinsy Andrews, co-chair of NEALS and Director of Neuromuscular…
Please join us on Thursday, June 9th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speakers Honora…
You are invited to attend our first event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and the NEALS Patient Education & Advocacy Committee on this new series – creating a platform for the ALS community to meet some of the key people…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Join the Conversation on June 14 Overview of research at ALS TDI and current clinical trials. Tuesday, June 14, 2022 | 5:00 to 6:00pm EDT ET Led by Dr. Nadia Sethi Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Please join us on Thursday, June 16th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speaker Bruce…
The ALS Association/Northeast ALS Consortium Educational Webinar Healey ALS Platform Trial Regimen E: A Participant's Guide Friday, June 17, 2022 5:00 - 6:00 PM EDT The purpose of this webinar is to provide an overview of how SLS-005 (trehalose) may help to slow ALS and illustrate what potential participants can expect when enrolling in Regimen…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
About the Program Many people living with ALS qualify for Medicare to provide their health insurance after they are no longer working full-time. This presentation will examine Medicare eligibility, enrollment, coverage, costs, assistance paying for costs, and considerations when choosing between traditional Medicare and a private Medicare advantage plan. Questions, answers and discussion will follow…
Weekly Q&A with guest speaker Jackie Whitesell, MD of Saint Alphonsus Medical Center in Idaho
June 24-26, 2022 The traditional annual Tri-State Trek is a fully supported, 3-day, 270-mile route from Boston to Greenwich. It's designed to offer cyclists an unforgettable weekend of athleticism, camaraderie, and dedication to ending ALS. The ride to end ALS. The Tri-State Trek is a 270-mile fully supported bike ride from Boston, MA to Greenwich, CT.…
Presented by Chan Zuckerberg Initiative at the 2022 Aspen Ideas Festival At just 37 years old, Brian and Sandra, who met and fell in love on the 2008 Obama campaign, found their world upended by Brian’s diagnosis of ALS and the possibility that he may have only six months to live. This is a story…
