The International Symposium on ALS/MND occurred December 6th through 9th, and some community members attended and presented at the conference. They returned with new knowledge, perspectives, and experiences that they would like to share with the broader community! That is why we are hosting a community conversation that will allow presenters/attendees to compare notes and share what…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Happy 2023! Time to make some new friends and catch up with old ones in the first social hour of the new year. For those who may not know, social hour is an hour-long meeting where members of the community can come to hang out, chat, and spend time together. We know that the ALS…
Special Topic: Regimen C Updates Please join us on Thursday, January 12 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD, and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, we will be…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
The 50 in 1 Bar Crawl is back! Saturday, February 4th 2023 After the past couple of years we could all use a drink…or a few. We will attempt to have all 50 states participate in the largest ALS Bar Crawl ever! Each state will host at least one crawl to make this the ultimate ALS…
About the Program: Join us for our January ALS Learning series with Dr. Paul Mehta to learn how the National ALS Registry helps advance research. Dr. Mehta will discuss how to join the National ALS Registry, what information they collect and why, and the type of research the registry is conducting. A Q&A session will…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
You’ve heard of advocating for ALS, you’ve heard of organizing for ALS, but have you ever heard of…mapping it? That’s right, I said mapping! He has created many maps for his Geospatial Hub, including a map of ALS clinics throughout the US, so people living with and impacted by ALS can easily see where their…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Learn about the importance of clinical trials, how to find a suitable clinical trial, and what to consider if you want to take part and next steps. Moderated by Rachael Marsden. Panelists include Allison Bulat, Nadia Sethi & Paula Trefiak.
Weekly Q&A with guest speaker Jonathan Katz, MD, Site Investigator at CPMC
They say a picture is worth a thousand words, which means pictures are pretty powerful. Would you like to harness the power of photos and videos to help enhance your advocacy? Then look no further than Instagram! This photo-centered platform can help you add some creativity and depth to telling your story and advocating in…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
As ALS progresses, eating and drinking can become difficult, which can often lead to discussions about feeding tubes. The decision to get a feeding tube is a personal one. There are advantages and disadvantages that must be taken into account when considering a feeding tube. It can be helpful to hear from those who have…
Gather around, good people! I AM ALS is hosting a Town Hall on Thursday, February 2nd at 5 pm, ET! Brian, Sandra, and I AM ALS’s board will give a presentation on Synapticure, how I AM ALS has taken steps to create an Independent Committee for any matters related to Synapticure, and, of course, answer…
