Weekly HEALEY ALS Platform Trial Webinar
VirtualWeekly Q&A with guest speaker Jonathan Katz, MD, Site Investigator at CPMC
Instagram 101
VirtualThey say a picture is worth a thousand words, which means pictures are pretty powerful. Would you like to harness the power of photos and videos to help enhance your…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Ask Me Anything ALS – Feeding Tubes/Nutrition
VirtualAs ALS progresses, eating and drinking can become difficult, which can often lead to discussions about feeding tubes. The decision to get a feeding tube is a personal one. There…
I AM ALS Town Hall on Synapticure
VirtualGather around, good people! I AM ALS is hosting a Town Hall on Thursday, February 2nd at 5 pm, ET! Brian, Sandra, and I AM ALS’s board will give a…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
Let’s Talk About It: Bringing Life into Living with ALS/PLS
VirtualReceiving an ALS diagnosis is devastating for many reasons, including the knowledge that with a progressive loss of function will potentially come the loss of employment and much-loved activities. This…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
More Than Our Stories Conference
Virtual or In PersonYes, your stories are compelling. So are your ideas. We are more than our stories. Please join us in person or virtually on February 14 and 15, 2023, for a day of idea-sharing followed…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those…
Les Turner Hope Through Caring Gala
Radisson Blu Aqua Hotel 221 N Columbus Dr, Chicago, IL, United StatesThis is an extraordinary moment in ALS care, research and discovery. Through the efforts of a fiercely determined group of ALS advocates, two new drugs were approved by the FDA…
Town Hall: Friendships and ALS
VirtualOne of the most common comments we hear is how hard it is to maintain friendships once someone is diagnosed with ALS. Join us to hear examples of friends who are making the best of a bad situation, examples of how to support a friend with ALS, and how people with ALS can continue to support their support squad!
Sharing Success: A Fireside Chat with the 2022 Award Winners
VirtualAn informal conversation with the 2022 Award winners on their careers and their contributions to the field of ALS/MND. Panelists include Sally Light (Humanitarian Award recipient), Dr. Richard Bedlack (Forbes…
National ALS Registry: Learn How You Can Join the Fight Against ALS.
VirtualNational ALS Registry: Learn How You Can Join the Fight Against ALS.
ALS & Relationships, Sex, and Intimacy
VirtualAbout the Program A person living with ALS may not feel comfortable addressing relationship, intimacy and sexual health changes that occur during their ALS journey with their healthcare providers. Although…
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with…
FDA’s Rare Disease Day 2023
VirtualWe are excited to announce FDA’s Rare Disease Day will be on Monday, February 27, 2023 and registration is open for this virtual event. Dr. Robert M. Califf, Commissioner of Food and Drugs, will…