Weekly HEALEY ALS Platform Trial Webinar
Virtual
Free
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ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Free
ALS Association Greater Sacramento Chapter Transitions Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Free
ALS Reversals: An Update for 2022
VirtualDr. Richard Bedlack grew up in a small town in central Connecticut. He went to college at William and Mary in Virginia, then back to Connecticut for an MD and Ph.D. in Neuroscience at UConn. Finally, he came to Duke where he completed his Medicine Internship, Neurology Residency, Neuromuscular Fellowship, and Masters in Clinical Research…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualThursday, December 1st, 5:00 pm EST: Weekly Q&A with guest speaker Catherine Douthwright PhD, CCRP from UMass Worcester- Click here to register Catherine Douthwright PhD, CCRP Catherine brings years of previous research coordinator experience to her current role working on the Platform Trial at the University of Massachusetts Chan Medical School in Worcester, MA, where she also serves…
Free
33rd International Symposium on ALS/MND
VirtualThe International Symposium is the biggest annual conference dedicated to ALS and MND research. Each year we bring together researchers from around the world to share new understanding of amyotrophic lateral sclerosis and motor neurone disease. This year's event takes place between 6 - 9 December 2022. More details on the event will be online soon.
£60
Ask Me Anything ALS – Finding Meaning as a Caregiver
VirtualALS brings with it a lot of uncertainty and loss emotionally and physically – for the person living with ALS and their caregivers and loved ones. As a caregiver, you’ll experience many different emotions along this journey, and with so much to learn plus the shock of diagnosis, it can feel like you’re lost in a foreign…
Free
Sanofi Himalya trial in ALS
VirtualAbout the Event Dr. Merit Cudkowicz is the Director of the Sean M. Healey & AMG Center for ALS, Chief of Neurology at Mass General, Director and the Julieanne Dorn Professor of Neurology at Harvard Medical School. Dr. Cudkowicz’s research and clinical activities are dedicated to the study and treatment of people with Amyotrophic Lateral…
Free
Postponed ALS & Exercise
VirtualAbout the Program: Many people living with ALS struggle to understand whether it is OK to exercise, what kind of exercise is most beneficial, and whether exercise slows disease progression. Please join as, Hannah Redd PT, DPT, NCS, at Shirley Ryan AbilityLab, will discuss the benefits of exercise among people living with ALS along with…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualPlease join us on Thursday, December 8th at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD, and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, we will be joined by Mia Resendes, Primary Coordinator…
Free
Twitter 101 Presentation
VirtualAre you looking to share your story with a broader audience or increase the scope of your advocacy? If so, using social media platforms like Twitter may help. If you feel daunted or overwhelmed by using social media, you’re not alone! That is why community members Mandi Bailey (aka the Self-Taught Social Media Mama) and…
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Free
Holiday Tricks and Tips
VirtualMcFinn Lovere ALS ADVOCATE We are excited to host EverythingALS Community Event: Share your Tips and Tricks for Living with ALS We invite you to EverythingALS Community “Tips and Tricks” Webinar, hosted by McFinn Lovere from EverythingALS Team. We are excited to host EverythingALS Community Event: Share your Tips and Tricks for Living with ALS We invite…
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Free
International Symposium on ALS/MND Debrief
VirtualThe International Symposium on ALS/MND occurred December 6th through 9th, and some community members attended and presented at the conference. They returned with new knowledge, perspectives, and experiences that they would like to share with the broader community! That is why we are hosting a community conversation that will allow presenters/attendees to compare notes and share what…
Free
ALS Association Greater Sacramento Chapter Transitions Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Free
ALS Association Greater Sacramento Chapter Support Group Meetings
VirtualThe ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Free
January Social Hour
VirtualHappy 2023! Time to make some new friends and catch up with old ones in the first social hour of the new year. For those who may not know, social hour is an hour-long meeting where members of the community can come to hang out, chat, and spend time together. We know that the ALS…
Free
Weekly HEALEY ALS Platform Trial Webinar
VirtualSpecial Topic: Regimen C Updates Please join us on Thursday, January 12 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD, and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, we will be…
Free
ALS Office Hours
VirtualWho We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
50 in 1 Bar Crawl for ALS
The 50 in 1 Bar Crawl is back! Saturday, February 4th 2023 After the past couple of years we could all use a drink…or a few. We will attempt to have all 50 states participate in the largest ALS Bar Crawl ever! Each state will host at least one crawl to make this the ultimate ALS…