Register to Attend the ALS TDI Summit! A free event for the ALS community On Friday, October 14, 2022, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Please join us for an evening of cocktails, dinner, and live music as we honor our close friends and family members with ALS. We come together as a community to recognize the progress of research toward ending this disease and need to continue the fight. The White Coat Affair gala is a powerful evening that…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Please join us on Thursday, October 20th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to Site Investigator…
Please join us on Saturday, Oct. 22 for the Les Turner ALS Foundation’s Celebration of Life. Led by Support Group Facilitator Anne Lidsky, PhD, this annual service honors those we have lost to ALS. It will be held online via Facebook Watch and recorded for those who cannot attend the live event. Join us for…
Join us in learning more about genetic counselling in ALS/MND. Genetic counsellor Ashley Crook will be providing us with an overview of genetic counselling, different types of genetic testing, and genetic counselling considerations before testing.
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series,…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
ALS Strategic Planning Workshop We would like to remind and encourage you to register for the virtual ALS Strategic Planning Workshop occurring this week on Wednesday October 26th and Thursday October 27th. A draft strategic plan of the highest priorities for research that will lead the way to the discovery of effective interventions for the diagnosis, treatment, management, prevention, or cure of…
About the Event Dr. Paganoni is an Associate Professor at Harvard Medical School and works as a physician scientist at the Healey Center for ALS at Massachusetts General Hospital and at Spaulding Rehabilitation Hospital.Her research focuses on clinical trials and therapy development for ALS. She has served as PI of several ALS clinical trials and…
Family friendly morning awareness walk! Donuts and coffee served! Saturday, October 29 at 10am-12pm FREE to participate! The garden/park area behind Monterey Church of Christ 6111 82nd Street Lubbock, TX 79424 Contact: Charlene Olson (806) 778-0902 Link to register and join our walk team: https://secure2.convio.net/alsa/site/TR?fr_id=15057&pg=team&team_id=404606 Link to our team Facebook page: https://www.facebook.com/Guns-Up-for-ALS-117446676764251
Jim Hilliard LOVED golf. What better way to honor his memory than to host a Team Hilliard Charity Golf Tournament in his honor. We are thrilled to have Baylor Orthopedic Spine Hospital as our “World Series” Event Sponsor. Dr. Hilliard was one of the founders of Arlington Othopedic Associates and was instrumental in creating BOSHA…
21st Annual NEALS Meeting November 1 - 3, 2022 The 2022 NEALS Meeting will be held in November in a hybrid format – both virtually and at the Opal Sands Resort in Clearwater Beach, Florida! 2022 Abstract Submission Abstract submission for the 2022 Annual NEALS Meeting is now closed. Two abstract awards will be given…
This webinar will provide information on ALS/MND treatments currently in Phase 3 Clinical Trials. We will hear directly about timelines, where the sites are, other programs offered, and who to contact if more information is needed. Moderated by Gethin Thomas, Executive Director, Research - MND Australia, hear from AB Science, Amylyx, Biogen, Clene Nanomedicine, Ferrer,…
Welcome to St. Pete Brewfest, sponsored by AccuBrew! One of the newest, local beer festivals in Tampa Bay, St. Pete Brewfest features an array of local craft breweries, live music, food trucks and beer-themed vendors. All-you-can-sample tickets will allow participants unlimited tastings from the offerings of St. Pete’s best breweries, with proceeds benefiting H.O.O.A.H. and…
A fun evening of food, live music, dancing, live auction (including 10 guns, and many other prizes!), silent auction, raffles, and door prizes. Saturday, November 5, from 6pm-12am PrimaVista Event Center 402 N Inler Ave Lubbock, TX 79416 Contact: Amanda Stephens (806)777-9989 Link to the event page on Facebook: https://fb.me/e/bxE7N6NBl Tickets: $50 includes meal, $35 no…
Join us for the 12th Annual Les Turner Symposium on ALS. At this symposium, you will hear from leading ALS scientists and clinicians who will discuss advances in ALS research and care. Individuals with ALS, as well as their family members and caregivers are welcome. Medical professionals who work with patients with ALS are also…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
ALS brings with it a lot of uncertainty and loss emotionally and physically. It can feel like your body is failing you, and lead to mental and emotional struggles related to what it means to live with ALS, and how to find meaning while living with it. Join us for a conversation on November 8th…
About the Event Dr. Heiman-Patterson is the Director of the Center for Neurodegenerative Disorders and a Professor in the Department of Neurology at the Lewis Katz School of Medicine at Temple University. She directs the MDA/ALS Center of Hope, including the clinical and laboratory research programs. Her career has always been dedicated to research in neuromuscular…
Speakers: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Nazem Atassi (Sanofi) The webinar discussion will include the mechanism of action of RIPK1 inhibition, efficacy in animal models, results from Phase 1 first in human studies, and Phase 2 study design and update on enrollment.
I AM ALS and People People Media are excited to invite you to a special virtual screening of the feature-length documentary Sometimes I Shake, followed by a live Q&A with the film team, and ALS community members. The event will be on November 9th at 8 pm ET. Sometimes I Shake is a moving documentary about music professor…
Neuroscience 2022 will be held in-person in San Diego, CA, November 12-16. SfN will also offer a sampling of annual meeting content virtually, including the opportunity for virtual posters. Learn more about the Neuroscience 2022 Virtual Component. Each year, scientists from around the world congregate to discover new ideas, share their research, and experience the best…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
