About the Program With the advancement of technology and home automation systems, tasks that were previously difficult for people living with ALS, such as turning the lights on and off in your home, have become much easier. Team Gleason’s mission is to have people living with ALS remain as independent as possible no matter where…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Please join us on Thursday, September 15 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Registrarse/Register Mes de la Herencia Hispana Conversacion con la Comunidad Temas de Idioma y Acceso Recibiendo un diagnostico de ELA, encontrar recursos e informacion y conectarse con las organizaciones adecuadas ya es dificil. Para los hispanohablantes afectados por ELA, la adicion de una barrera del idioma complica todo el proceso y puede convertirse en un…
Clinical trial design is evolving in the ALS/MND community. This webinar updates us on what the new models are, how they are changing the landscape and what are the practical implications for our community. Moderators: Gethin Thomas - Executive Director, Research | Motor Neurone Disease Australia Claire Magnussen, PhD - Program Manager, CAPTURE ALS, McGill…
Dallas/Fort Worth Wednesday, September 21, 2022 | 6:00 - 8:00pm Hilton Garden Inn DFW Airport South, 2001 Valley View Ln, Irving, TX 75061 Presented by Nadia Sethi, DDS, Director of Community Engagement and Outreach at the ALS Therapy Development Institute ALS Unfiltered is a series of live presentations and candid conversations about the science of ALS, drug…
Please join us on Thursday, September 22 at 5:00 pm EST (4:00 pm CST/2:00 pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, Ph.D., and Merit Cudkowicz, MD, MSc will present this week’s updates on the HEALEY ALS Platform Trial and answer questions from the audience. We will also be joined by guest speakers Mariah…
Join our Les Turner ALS family this year for Chicagoland’s largest gathering of people living with ALS and their friends and family! Teams fundraise in honor or memory of a loved one living with ALS and gather in a day full of celebration, hope, and courage. With food, music, and children’s activities, the day is…
ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our second event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
Register When a parent is diagnosed with ALS, we face the painful reality of losing our lifelong cheerleader earlier than we expected. On top of this grief lies the decision of how to best care for your parent as their ALS progresses. Attempting to cope with all of this while seeing to existing demands in…
Michael S. McGrath, MD, PhD – Chief Scientific Officer Neuvivo, Professor Department of Medicine, UCSF. Michael S. McGrath, MD, PhD is Professor, Departments of Laboratory Medicine, Pathology, and Medicine at The University of California San Francisco (UCSF). He has authored over 200 scientific articles in the fields of AIDS, cancer and neurological disease since joining…
Weekly Q&A with guest speaker Michael Elliott, MD, FAAN from Swedish Medical Center in WA
The Familial ALS team is excited to host Claire Clelland, PhD, MD, MPhil on Monday October 3rd at 6 p.m. ET/3 p.m. PT. Dr. Clelland is a neurologist specializing in the care of patients with dementia, including C9 carriers. Her lab at UCSF is developing novel CRISPR gene editing approaches for dementia and ALS, starting…
You will learn: The symptoms and early signs of ALS How ALS impacts those living with the disease Best practices for responding to people who cannot speak, walk or have another disability Much more through the question and answer section Jinsy Andrews, MD, MSc, FAAN: Director of Neuromuscular Clinical Trials at Columbia University in the City…
Presenters: Dr. Merit Cudkowicz (Sean M. Healey & AMG Center for ALS at MGH) and Dr. Shafeeq Ladha (Barrow Neurological Institute) The purpose of this webinar is to provide an overview of how SLS-005 (trehalose) may help to slow ALS and illustrate what potential participants can expect when enrolling in Regimen E of the Healey…
DAY 1 (Thursday, Oct 6th): 10:30 - 10:45am: WELCOME & INTRODUCTIONS 10:45am – 11:45pm CURRENT STATE OF ALS TRIALS MODERATOR: Fernando Vieira, MD 10:45 - 11:05am General overview of ALS Trials: What's new, opportunities and challenges Speaker: Merit Cudkowicz, MD, MSc, Chief of the Massachusetts General Hospital Neurology Service, Director, Sean M. Healey & AMG Center…
About the Program: Caregivers undergo changing dynamics and burnout when caring for a loved one. It’s important for others to maintain a more understanding and loving perspective so that they can cope effectively. Please join us on Thursday, October 6 from 12-1 p.m. (CT) for this month’s ALS Learning Series, “Navigating the Challenges of Caregiving…
Weekly Q&A with guest speaker Catherine Douthwright, PhD, CCRP of UMass Worcester
Hora Social del Mes de la Herencia Hispana / Hispanic Heritage Month Social Hour Hola. Que pasa? Como estas? Quieres pasar un rato con algunas personas increibles? Quiere conocer a otras personas hispanas que viven con ELA(ALS) y estan afectadas por ella? Nos alegra que nos haya encontrado! I AM ALS y el grupo Comunidades De…
DAY 2 (Friday, Oct. 7th): MODERATOR: TBD 9:30 - 9:45am: Welcome & Introductions 9:45 - 10:45am: Industry Presentations 9:45-10:05am: AC Immune. Speaker: Tariq Afroz, PhD. Abstract Title: “Immunotherapy targeting the C-terminal domain of TDP-43 decreases neuropathology and confers neuroprotection through microglial engagement in mouse models of ALS/FTD”. 10:05am – 10:25am: Axoltis Pharma. Speaker: Sighild Lemarchant, PhD Abstract Title: “A…
Join us for a day of informative demonstrations and sessions for people living with ALS, caregivers, healthcare professionals, and supporters of the ALS community. This unique event has something for everyone including various speakers with extensive expertise about different aspects of living with ALS, a learning lab and vendor fair, plenty of opportunities to interact…
DAY 3 (Tuesday, Oct. 11h) 9:00am - 4:30pm Eastern Time. We proudly present “NEUROTECH NOW”, a collaboration with Indu Navar, Founder of Everything ALS, Dr. Shelena Lalji, Founder of ALS Heroes, and Dr. Leigh Hochberg, of the Center for Neurotechnology and Neurorecovery at MGH. Morning Session (9:00am - 12:00pm ET): Neurodiagnostics: Digital Biomarkers - more…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
October 12 @7:00-8:00 AM (EST New York) In this webinar we will learn more about the new assistive technology of voice banking, how it works, when in the ALS/MND journey should it be done, and how to get access. Moderator: Sara Feldman – ALS Hope Foundation Panel: Alicia Gibb – MND New South Wales &…
We are excited to host EverythingALS Community Event: Telemedicine and You: Building Proactive, Personalized Care for all People with ALS. - Brian Wallach, Founder of Synapticure - Brook Croke, MPH, Certified genetics counselor in the Department of Pediatrics at SIU School of Medicine - Danielle Geraldi Samara , MD , Neurologist - Dr. Eric Anderson…
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