Matthew Harms, MD Associate Professor of Neurology at Columbia University Thursday, July 28, 2022 1:00 - 2:00 PM EDT This webinar will provide an approachable overview of the major genes involved in ALS: what those genes are, how they lead to ALS, and what ideas they are giving scientists for treating all forms of ALS.…
Please join us on Thursday, July 28th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special discussion about placebos with…
About the Event Prior to the establishment of NeuroSense, Alon founded MediCan Consulting, a successful consultancy firm which worked and collaborated with many leading pharmaceutical R&D companies, including Mediwound, Chiasma, Teva, Sol-Gel, FutuRx, NeuroDerm and others. The firm’s diligent employees were pioneers, who paved the way to more efficient and accurate work in the industry,…
Join us on Monday, August 8, 2022 for the Driving for Life Colorado Golf Tournament! Proceeds benefit the ALS Therapy Development Institute (ALS TDI) and their mission to end ALS. Driving for Life is one of the longest running fundraising campaigns to support ALS research through the game of golf. Thanks to the support of the golf community, Driving for Life has raised…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
9th Annual Matt Creen Golf Invitational Thursday, August 11, 2022 Odyssey Country Club 19110 S Ridgeland Ave Tinley Park, IL 60477 Registration and Driving Range: 9 am Shotgun Start: 10:45 am Open Bar: 4-8 pm Dinner: 5:30 pm Silent Auction and Raffle Throughout Dinner Matt Creen, General Counsel for the Currie Motors Group for 20…
Participant Numbers: Toll Free: 888-506-0062 International: 973-528-0011 Participant Access Code: 955552
Charles Brenner PhD at Stanford University, Alfred E Mann Family Foundation Chair in Diabetes and Cancer Metabolism, Charles Brenner is the Alfred E Mann Family Foundation Chair in Diabetes and Cancer Metabolism in the Department of Diabetes & Cancer Metabolism. His laboratory focuses on disturbances in nicotinamide adenine dinucleotide (NAD), the central catalyst of metabolism,…
About the Program: Have you ever thought about Voice or Message Banking, but don’t know where to start? Voice and message banking for people living with ALS can be an emotional, overwhelming, and seemingly complicated task to navigate. However, it doesn’t have to be. Anne Marie will discuss the differences between voice banking, message banking,…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
Featured Site: Vanderbilt University Medical Center Please join us on Thursday, August 18th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature…
AMX0035 (Amylyx Pharmaceuticals, Inc.) oral edaravone (Mitsubishi Tanabe Pharma Development America, Inc.) Given current data, AMX0035 is comparable or better to standard of care; AMX0035 would achieve common thresholds for cost-effectiveness if priced between $9,100 – $30,600 per year. Evidence indicates oral edaravone is comparable or incrementally better to standard of care; treatment would achieve…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
https://www.regulations.gov/commenton/FDA-2022-N-1436-0001
Join the Conversation on August 23 Overview of research at ALS TDI and current clinical trials. Tuesday, August 23, 2022 | 5:00 to 6:00pm EDT ET Led by Dr. Nadia Sethi Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Transition Support Group Meeting (Every fourth Tuesday of every month.)…
On June 23, 2022, the FDA unveiled its Action Plan for Rare Neurodegenerative Diseases including Amyotrophic Lateral Sclerosis (ALS) – a five-year strategy for improving and extending the lives of people living with rare neurodegenerative diseases by advancing the development of safe and effective medical products and facilitating patient access to novel treatments. We'd like to cordially…
Please join us on Thursday, August 25th at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about the HEALEY ALS Platform Trial. Sabrina Paganoni, MD, PhD and Merit Cudkowicz, MD, MSc will present updates on the Platform Trial and answer questions from the audience. In addition, this week will feature a special introduction to Site Investigator…
Join us on Sunday, August 28, 2022, for the Walk for Research! Enjoy a four-mile walk through Newton, MA. The walk proceeds benefit the ALS Therapy Development Institute (ALS TDI) and their mission to End ALS. Sunday, August 28, 2022 | 10am Zervas Elementary School 30 Beethoven Ave, Waban, MA 02468
About the Event Homes are where we all live, work, play, and thrive. At Prev.ai, we believe that homes should grow with us, and just as our lives change, so should our homes. We are a 100% virtual fall prevention program harnessing computer vision and AI, linked to a network of trained clinicians, to provide…
Please join us on Thursday, September 1st at 5:00 pm EST (4:00pm CST/2:00pm PST) for a webinar about biomarkers and the HEALEY ALS Platform Trial. James Berry, MD, MPH will present this week’s updates on the HEALEY ALS Platform Trial, discuss biomarkers, and answer questions from the audience. James Berry, MD, MPH Dr. Berry is the Director of…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Making Connections Support Group Meeting (Every third Saturday of every…
Using induced pluripotent stem cells as a platform for understanding ALS disease mechanisms and therapeutic development Dr. Maragakis is the Medical Director of the Johns Hopkins ALS Clinical Trials Unit and Director of the ALS Center for Cell Therapy and Regeneration Research and Professor of Neurology at Johns Hopkins University. The Center for ALS Specialty…
