2023 Annual NEALS Meeting The 22nd Annual NEALS Meeting will be held October 4 - 6, 2023. Please check back in late Spring for additional details, including information on virtual options.
BIO Patient Advocacy Coffee Chat The Future of Cures... and Coverage: Cell and Gene Therapies Wednesday, October 4, 2023 2:00 pm - 3:00 pm ET Please join us for a chat about the science behind gene and cell therapies, and the challenges patients face in accessing these therapies. The recently proposed CMS MDRP rule presents serious concerns around…
We invite you to join us and other people with ALS and families to engage in a positive setting of collaboration and community. We are excited to host EverythingALS Community Event: Non- Invasive Treatment of ALS Using Motor Neuron Hyperexcitability Suppression - Nader Yaghoubi MD , PhD Wednesday, October 4th, 4:00 PM Pacific Standard Time…
Location: Governors State University Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this unique opportunity to share your mother-heart with others. Register
Location: Grace Lutheran Glen Ellyn Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
3:00pm ET Come share the informal gathering designed to offer genuine support for those engaged in ALS caregiving. Enjoy the opportunity to be with other folks who have an intimate understanding of ALS and share your unique point of view as a caregiver. It is truly a wonderful experience to sit in council with ALS…
Location: Our Town Cinemas Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
HEARTLAND INTERNATIONAL FILM FESTIVAL Location: Glendale Landmark Theater 10 Meet the Filmmakers ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
SAVE THE DATE! March 8, 2024 will be the most magical night of 2024 so mark your calendars for our most important and inspiring night of the year to support our mission in the fight against ALS!
HEARTLAND INTERNATIONAL FILM FESTIVAL Location: Emagine Noblesville - Theater 14 Meet the Filmmakers ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
presented by Wendy Dainin Lau, MD Sunday, October 15, 2023 1:00-2:00 p.m. ET Join us for an inspirational talk with the author of the new book, “Inner Practice of Medicine.” In her talk, Wendy will share with us her transition from being an emergency room doctor who had lost her way, to finding the path…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Tahoe Support Group Meeting (Every third Thursday of every month.)…
2:00pm ET Enjoy the connection and unique perspective of other men living with ALS, male caregivers of persons living with ALS, sons of those with ALS, or any man touched by the disease. We will gather in council to share our experiences with the broad motivation to bring heartfelt connections and healing to the ALS…
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
Hello friends of CUPA, We are excited to announce our upcoming FREE webinar, "Expanded Access Policies and Compliance in an Ever-Changing Environment" taking place on Friday, October 20th from 12-1pm ET via Zoom. This moderated panel will bring together experts from the fields of law, bioethics, patient advocacy, business strategy, and the biopharmaceutical industry to discuss the intent of and compliance with US regulations about expanded…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
On Saturday, Oct. 21, we invite you to join us for a meaningful event that honors the memory of those we have lost to ALS. Led by Support Group Facilitator Anne Lidsky, PhD, this annual Celebration of Life will be a touching tribute. Event Details: Date: Saturday, Oct. 21 Time: 10:00 AM - 11:30 AM…
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
The ALS Association Greater Sacramento Chapter is committed to serving the needs of the ALS community during the COVID-19 crisis. We are offering Virtual Support Group Meetings to ensure those living with ALS and their caregivers continue to have access to their networks of support. Sacramento Support Group Meeting (Every third Saturday of every month.)…
Title: Ethical Principles & Informed Consent in Research Date/Time: Thursday, October 26th, 2023 at noon CST Discover the crucial role of informed consent in research at our October ALS Learning Series. Emma Schmidt, Clinical Research Project Manager at the Les Turner ALS Center at Northwestern Medicine, will unravel the history of informed consent, guide you…
ALS TDI OPEN HOUSE Thursday, October 26, 2023 | 4pm-6pm ALS TDI research lab 480 Arsenal Street, Suite 201, Watertown, MA 02472 The weekend will kick-off with the ALS TDI Open House at the ALS TDI research lab in Watertown, MA. Here, community members can enjoy light appetizers and cocktails while exploring our state-of-the-art lab…
ALS TDI Summit 2023 A Day of Updates on the Progress of ALS Research Friday, October 27, 2023 Boston Sheraton Hotel 39 Dalton St, Boston, MA 02199 On Friday, October 27, 2023, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is…
A Day of Updates on the Progress of ALS Research Friday, October 27, 2023 | 10am Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 On Friday, October 27, 2023, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free…
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
ALS TDI cordially invites you to the Saturday, October 28, 2023 | 6pm Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 Please join us for an evening of cocktails, dinner, and live music as we honor our close friends and family members with ALS. We come together as a community to recognize the…
Mark your calendar for the 2023 AANEM Annual Meeting, scheduled for November 1-4 at the JW Marriott Desert Ridge in Phoenix, AZ. The 2023 meeting will offer valuable in-person sessions, hands-on workshops, and social events, as well as an option to participate virtually. Physicians, technologists, and other healthcare professionals are invited to learn about the latest in NM, MSK, EDX, and…
Location: Bowtie Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Carolyn Parrott, whose daughter passed in 2021 after bravely facing bulbar-onset ALS, expressed a longing to connect with other mothers in solidarity. Join Carolyn and our CCALS team in this unique opportunity to share your mother-heart with others. Register
Location: Village East Meet Andrea Lytle Peet ‘Go On, Be Brave’ is a film about Andrea Lytle Peet’s race against time – a diagnosis of ALS and an attempt at the impossible – to be the first person with ALS to complete a marathon in all 50 states. Trailer
Who We Are We are a group of caring people with various lived experiences with ALS, and professional expertise in the field of ALS. We understand the challenges associated with ALS, and simply want to be available to share resources and learnings that may help others. What We Do We make ourselves available for one…
Our 17th Annual Casino Night is Almost Here Step into a night of excitement at the 17th annual All In For ALS Casino Night on Saturday, Nov. 4, from 7-11 p.m. at the East Bank Club in Chicago. Immerse yourself in the thrill of live blackjack, roulette, and craps while supporting the Les Turner ALS Foundation—the…
