The Fight ALS Film Fest is open to the public, offering viewing of the documentaries through May by registering at als.net/alsfilmfest. Watch the films online at your convenience and then join their group discussions.
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series,…
The Tri-State Trek is a weekend bike ride to benefit ALS research at the ALS Therapy Development Institute (ALS TDI). All proceeds will help find treatments for ALS, also known as Lou Gehrig's disease. We are thrilled to announce that the 2023 Trek will be moving to Northern New England, with a beautiful new route through…
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series,…
Learn How ALS TDI is Partnering with Unite Genomics to Expand the ARC Study Led by ALS TDI and Unite Genomics Wednesday, August 9, 2023 | 3:00 - 4:00pm EDT The ALS Research Collaborative (ARC) has been gathering over eight years of comprehensive data from people with ALS, however, the untapped potential of participants' electronic…
Sunday, September 10, 2023 | 10am Zervas Elementary School 30 Beethoven Ave, Waban, MA 02468 The ALS TDI Walk for Research unites those impacted by ALS while raising crucial funds for ALS research, and paying homage to the town of Newton, where ALS TDI originated.
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series,…
Meet Your ALS Orgs Presentations from Hope Loves Company, MAC Angels, and Roon Tuesday, September 26, 2023 | 3:00 - 4:00pm EDT You are invited to attend our fourth event in the Town Hall series “Meet Your ALS Orgs”. The next event in the series will be held on September 26th at 3 p.m. ET…
ALS TDI OPEN HOUSE Thursday, October 26, 2023 | 4pm-6pm ALS TDI research lab 480 Arsenal Street, Suite 201, Watertown, MA 02472 The weekend will kick-off with the ALS TDI Open House at the ALS TDI research lab in Watertown, MA. Here, community members can enjoy light appetizers and cocktails while exploring our state-of-the-art lab…
ALS TDI Summit 2023 A Day of Updates on the Progress of ALS Research Friday, October 27, 2023 Boston Sheraton Hotel 39 Dalton St, Boston, MA 02199 On Friday, October 27, 2023, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is…
A Day of Updates on the Progress of ALS Research Friday, October 27, 2023 | 10am Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 On Friday, October 27, 2023, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free…
GO ON, BE BRAVE SCREENING, Meet Andrea Lytle Peet Friday, October 27, 2023 | 7:30pm Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 After the ALS TDI Summit
ALS TDI cordially invites you to the Saturday, October 28, 2023 | 6pm Sheraton Boston Hotel 39 Dalton Street, Boston, MA 02199 Please join us for an evening of cocktails, dinner, and live music as we honor our close friends and family members with ALS. We come together as a community to recognize the…
Join a Community Session Led by Dr. Nadia Sethi Tuesday, December 12th from 4:00 pm to 5:00 pm ET Due to popular demand from our community, we're excited to host a special edition of Community Conversations on December 12th. Join us as we discuss the various ways that the ALS community can actively contribute to advancing research!…
ALS Patient Fellows Share Insights from the ALS MND Symposium ALS Patient Fellows Share Insights from the ALS MND Symposium Thursday, January 25, 2024 | 3:00 - 4:00pm EDT Participate in our upcoming Town Hall on January 25th to hear from community members who attended the International Symposium on ALS/MND this past December. This event will…
Unveiling the ALS Trial Navigator - Empowering Your Trial Search Watch a live demo of this innovative platform and get your questions answered! Tuesday, February 27, 2024 | 3:00 - 4:00pm EDT Join us for an exciting Town Hall unveiling the innovative ALS Trial Navigator – a comprehensive resource designed to empower individuals and caregivers in…
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series,…
A new approach to genetic testing for patients and family members at risk of ALS Wednesday, April 3, 2024 | 3:00 - 4:00pm EDT Participate in our upcoming ALS Town Hall on April 3rd to hear how ALS scientists, advocates, innovators, and gene carriers have collaborated to develop the "Light the Way" program. With the…
Discover Roon: Your Ultimate ALS Resource for Answers to All Your Questions: Wednesday, April 17, 2024 | 3:00 - 4:00pm EDT Join us on April 17, 2024 for an ALS Town Hall led by Roon. Through Roon, a completely free app and website, you can find curated short videos answering thousands of the top questions that…
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny of SunnyStrong. Thank you to our incredible sponsor Mitsubishi Tanabe Pharma America for supporting this program!…
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series,…
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny of SunnyStrong. Thank you to our incredible sponsor Mitsubishi Tanabe Pharma America for supporting this program!…
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny of SunnyStrong. Thank you to our incredible sponsor Mitsubishi Tanabe Pharma America for supporting this program!…
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny of SunnyStrong. Thank you to our incredible sponsor Mitsubishi Tanabe Pharma America for supporting this program!…
This ALS Awareness Month, join us for panel discussions on these incredible ALS films. This series is being hosted by The ALS Therapy Development Institute (ALS TDI) and Her ALS Story. Our emcee for the events will be Sunny of SunnyStrong. Thank you to our incredible sponsor Mitsubishi Tanabe Pharma America for supporting this program!…
The Tri-State Trek, a dynamic weekend biking event dedicated to advancing ALS research at the ALS Therapy Development Institute (ALS TDI). Get ready for an extraordinary experience, with picturesque routes weaving through the stunning landscapes of Massachusetts, New Hampshire, and Maine. Your participation ensures more than just a memorable journey — it's a vital step towards…
Share Your Experience and ALS Advance Research – Join the ARC Study Led by Alan Premasiri, Sr. Manager, Clinical Operations at ALS TDI Thursday, August 1, 2024 | 3:00 - 4:00pm EDT Join us for a virtual discussion about the ALS Research Collaborative (ARC) study! This innovative research initiative allows people with ALS to share their unique…
Walk don’t run! No seriously, walk. Take in the sights. Enjoy a leisurely walk under the shade of the trees on a beautiful day with your dog. Take time to connect with family and friends. Imagine doing this all while raising money to end ALS at the ALS Walk for Research!
October 3-5, 2024 Boston, Massachusetts Each year, the ALS Therapy Development Institute (ALS TDI) hosts Leadership Weekend in an effort to unite with, engage, and thank the global ALS community that makes our research possible. The Leadership Weekend consists of a series of community events including an Open House event at ALS TDI’s lab, the…
The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees about ALS TDI's latest work to discover and develop effective treatments for ALS. You can join this event virtually or in person! The 2024 ALS TDI Summit will include: ALS research updates from members of the…
