You and your family are invite to the third annual Rock, Roll & Stroll. All funds benefit the ALS Therapy Development Institute (ALS TDI). Please register and/or donate today! Event Details: The Rock, Roll & Stroll is a Día de los Muertos themed walk. The event is Saturday, October 30, 2021, at Coyote Point Recreation…
A New Year's Day polar bear plunge is an annual tradition shared by communities around the country and the world. The Corpus Christi Polar Bear Plunge is our local take on the tradition! Your registration includes a souvenir t-shirt and a drink from Fajitaville. 100% of your registration payment goes to ALS TDI, an A-rated nonprofit…
Join us on Saturday, March 19th for Brewfest for ALS: Vista, CA. Guests will be able to sample beers from local Ales for ALS™ brewers and enjoy food trucks, live music, and all that Dogleg Brewing Company has to offer while supporting an important cause. Brewfest for ALS supports the ALS community, and ALS research at the…
Attend the Tri-State Trek Town Hall on April 7th to learn all about ALS TDI's biggest fundraiser of the year! The annual Tri-State Trek is a fully supported, 3-day, 270-mile route from Boston to Greenwich. It's designed to offer cyclists an unforgettable weekend of athleticism, camaraderie, and dedication to ending ALS. Whether your are an…
ALS Town Hall: ALS TDI Demonstrates New Groundbreaking Biomarker Tools for ALS Thursday, April 21, 2022 | 3:00pm - 4:30pm ET Recently, ALS TDI and Google introduced new groundbreaking digital tools that are able to objectively measure ALS symptom progression. These new tools have now been released publicly to anyone who might make use of them – including clinicians,…
Register to Attend a Community Discussion on ALS Research and Trials Next Tuesday, May 3rd, join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for a new virtual discussion series – ALS TDI Community Conversations. Through these conversations, Nadia will provide information on research and clinical trials while…
Register to Attend a Community Discussion on ALS Research and Trials On Tuesday, May 24th, join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for a new virtual discussion series – ALS TDI Community Conversations. Through these conversations, Nadia will provide information on research and clinical trials while…
Discussion on Supplement Use for People with ALS Led by Dr. Jinsy Andrews and Dr. Merit Cudkowicz Wednesday, June 8, 2022 | 3:00 - 4:30pm EDT On June 8th, join us for a discussion on supplement and off-label medication use for people living with ALS, led by Dr. Jinsy Andrews, co-chair of NEALS and Director of Neuromuscular…
You are invited to attend our first event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and the NEALS Patient Education & Advocacy Committee on this new series – creating a platform for the ALS community to meet some of the key people…
Join the Conversation on June 14 Overview of research at ALS TDI and current clinical trials. Tuesday, June 14, 2022 | 5:00 to 6:00pm EDT ET Led by Dr. Nadia Sethi Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion…
June 24-26, 2022 The traditional annual Tri-State Trek is a fully supported, 3-day, 270-mile route from Boston to Greenwich. It's designed to offer cyclists an unforgettable weekend of athleticism, camaraderie, and dedication to ending ALS. The ride to end ALS. The Tri-State Trek is a 270-mile fully supported bike ride from Boston, MA to Greenwich, CT.…
Join us July 1-2, 2022 on the Full Course at VIRginia International Raceway for Dave's Race 4! To drive, click the Apply to Drive Button to submit your application to participate on May 28, 2022. If accepted, drivers will have the option to pay/fundraise $499 for a one day participant or $779 for a two day participant.…
Join us on July 9, 2022 on the Big Willow course at the Willow Springs International Raceway! Apply to Drive Each driver interested in joining Racing for ALS: Cory's Race much first complete the online application. Applications will be reviewed and drivers will be notified to confirm or decline participation in the event. If accepted,…
ALS Town Hall: Discussion on Tegoprubart Phase 2a Results Led by Dr. David-Alexandre C. Gros and Dr. Steve Perrin of Eledon Pharmaceuticals Wednesday, July 27, 2022 | 3:00 - 4:00pm EDT On Wednesday, July 27, 2022, ALS TDI will be hosting a new ALS Town Hall discussion on tegoprubart. Tegoprubart is a potential treatment for…
Join us on Monday, August 8, 2022 for the Driving for Life Colorado Golf Tournament! Proceeds benefit the ALS Therapy Development Institute (ALS TDI) and their mission to end ALS. Driving for Life is one of the longest running fundraising campaigns to support ALS research through the game of golf. Thanks to the support of the golf community, Driving for Life has raised…
Join the Conversation on August 23 Overview of research at ALS TDI and current clinical trials. Tuesday, August 23, 2022 | 5:00 to 6:00pm EDT ET Led by Dr. Nadia Sethi Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion…
Join us on Sunday, August 28, 2022, for the Walk for Research! Enjoy a four-mile walk through Newton, MA. The walk proceeds benefit the ALS Therapy Development Institute (ALS TDI) and their mission to End ALS. Sunday, August 28, 2022 | 10am Zervas Elementary School 30 Beethoven Ave, Waban, MA 02468
Dallas/Fort Worth Wednesday, September 21, 2022 | 6:00 - 8:00pm Hilton Garden Inn DFW Airport South, 2001 Valley View Ln, Irving, TX 75061 Presented by Nadia Sethi, DDS, Director of Community Engagement and Outreach at the ALS Therapy Development Institute ALS Unfiltered is a series of live presentations and candid conversations about the science of ALS, drug…
ALS Town Hall: Meet Your ALS Orgs #2 Introduction to Organizations in the ALS Space Tuesday, September 27, 2022 | 4:00 - 5:30pm EDT You are invited to attend our second event in the new Town Hall series “Meet Your ALS Orgs”. ALS TDI is thrilled to be partnering with I AM ALS, Answer ALS Research Program, and…
Register to Attend the ALS TDI Summit! A free event for the ALS community On Friday, October 14, 2022, from 10:00 - 4:00 p.m. ET, join the ALS community and ALS TDI for the ALS TDI Summit. The ALS TDI Summit is a free conference that aims to inform and empower the ALS community by educating attendees…
Please join us for an evening of cocktails, dinner, and live music as we honor our close friends and family members with ALS. We come together as a community to recognize the progress of research toward ending this disease and need to continue the fight. The White Coat Affair gala is a powerful evening that…
One of the most common comments we hear is how hard it is to maintain friendships once someone is diagnosed with ALS. Join us to hear examples of friends who are making the best of a bad situation, examples of how to support a friend with ALS, and how people with ALS can continue to support their support squad!
Discussion on Family and ALS Hosted by Young Faces of ALS and Her ALS Story Tuesday, March 21, 2023 | 6:00 - 7:00pm EDT Although family dynamics are always different, one thing most of us have in common is wanting to find ways to best support each other through the good and bad times. On March 21st,…
The ALS Research Collaborative (ARC) and ARC Data Commons Discussion and demo led by Dr. Fernando Vieira Thursday, April 6, 2023 | 3:00 - 4:00pm EDT On Thursday, April 6, 2023 at 3:00 pm ET, join a special ALS TDI Town Hall to hear Dr. Fernando Vieira, CEO and CSO at ALS TDI, provide an overview…
Join Dr. Nadia Sethi, the Director of Community Outreach and Engagement at the ALS Therapy Development Institute (ALS TDI), for this new virtual discussion series. These conversations will provide an overview of research at ALS TDI, discuss current clinical trials, and provide space to converse and ask questions about ALS science and research. Through this series,…
Intimacy and ALS Led by members of the ALS community Tuesday, April 18, 2023 | 5:30 - 7:00pm EDT From dating and relationships to sexuality and your sex life, ALS changes a lot. This special 1.5-hour-long ALS Town Hall will attempt to cover the many ways that intimacy can be affected by ALS, while also discussing how…
The Fight ALS Film Fest is open to the public, offering viewing of the documentaries through May by registering at als.net/alsfilmfest. Watch the films online at your convenience and then join their group discussions.
The Fight ALS Film Fest is open to the public, offering viewing of the documentaries through May by registering at als.net/alsfilmfest. Watch the films online at your convenience and then join their group discussions.
The Fight ALS Film Fest is open to the public, offering viewing of the documentaries through May by registering at als.net/alsfilmfest. Watch the films online at your convenience and then join their group discussions.
From the Passenger Seat is an educational adventure film that explores one man's exceptional life, a heroic two-year battle with ALS, and an epic farewell road trip. Through a creative lens, F4D Studio shows what life can be when it is lived with purpose, immobile vigor, and an unquenchable thirst for experiences. This film can be watched at https://fromthepassengerseatfilm.com/
