The ALS Association Golden West Chapter is dedicated to the fight against ALS in many ways, including funding global research efforts, supporting scientific and clinical collaboration, connecting people with ALS to clinical trials, partnering with multidisciplinary ALS clinics and centers, educating the public about ALS, providing professional care management services to families facing ALS, pursuing important public policy initiatives, and bringing the ALS community together.
The Golden West Chapter’s compassionate Care Services team provides expert advice and assistance for people living with ALS, free of charge. Our knowledgeable and dedicated Regional Care Managers help individuals and families access the best information, resources, equipment, and experts to maintain and maximize health, independence, communication, mobility, safety, and quality of life. Support groups throughout our service area provide practical solutions for everyday challenges and a connection with others living with ALS. Medical professionals associated with more than 22 multidisciplinary ALS specialty clinics supported by the Chapter facilitate clinical trials and ALS studies. This proven model of robust, proactive, multidisciplinary care helps people live longer and better with ALS while also advancing the search for treatments and a cure.
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
Contact Care Manager Robin Eller for information on how to participate using Zoom! 661-364-1913; reller@alsagoldenwest.org
San Fernando Valley Online Support Group Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsagoldenwest.org
Santa Rosa - ALS Caregiver Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
Turlock Online Support Group Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsagoldenwest.org; 818-292-4315
Corte Madera - ALS Caregiver Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
All Chapter Trach and Vent Online Support Group **NEW** via Zoom! Contact Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org for information on how to participate!
Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsagoldenwest.org
Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
An online support group specifically for those with a Familial ALS diagnosis Contact facilitator Cynthia Marks for information on how to participate via Zoom! Cynthia Marks, RT: cmarks@alsagoldenwest.org; 909-736-5677
Santa Rosa/North Bay ALS Online Support Group Please Contact Facilitator: Daniel Potapshyn, MA, 707-861-0257 or dpotapshyn@alsagoldenwest.org for details on how to participate!
Please contact facilitator Debbie Joy for information on how to join using Zoom! Debbie Joy: 562-741-8138; djoy@alsagoldenwest.org
Murrieta/Palm Springs Online Support Group Contact Mika for information on how to Participate using Zoom!! Facilitator: Mika Flanngan, MSW 951-534-6638, mflanngan@alsagoldenwest.org
Carson Support Group - Now Meeting Online using Zoom! Contact Brandon for information on how to participate! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsagoldenwest.org
Santa Barbara ALS Support Group Facilitator: Fran Finney, 805-259-8473 ffinney@alsagoldenwest.org ***Call Fran for Info on New Online Meeting!***
Contact Dawn for information on how to join virtually using Zoom! Facilitator: Dawn White, MPH,CMC,CCP, 925-324-5961, dwhite@alsagoldenwest.org
Glendale Virtual Support Group Contact Cynthia Marks for information on how to join using Zoom! Facilitator: Cynthia Marks, RT 909-736-5677, cmarks@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
Veteran's ALS Online Support Group This group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits and resources currently available, while also meeting other Veterans and their families for support on their ALS journey. Please contact Robin…
Contact Kathleen for information on how to join online using Zoom! Facilitator: Kathleen Kelsey, RCP 818-292-4315 or Kkelsey@alsagoldenwest.org
San Luis Obispo - ALS Online Support Group Please contact Julie for information on how to join the meeting using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: 831-247-9878 or jscurich@alsagoldenwest.org mailto:reller@alsagoldenwest.org
Bakersfield/Fresno ALS Online upport Group Please contact Robin for information on how to join the meeting using Zoom! Facilitator: Robin Eller, RT: 661-364-1913 or reller@alsagoldenwest.org mailto:reller@alsagoldenwest.org
All-Hawaii Support Group Please contact Regional Care Manager Cindy for information on how to participate via Zoom! Facilitator: Cindy Hatori, MS chatori@alsagoldenwest.org; mailto:tdavis@aslagoldenwest.org; 808-219-9036
Pomona Online Support Group Call Crystal for information on how to participate using Zoom! Facilitator: Crystal Galvan, RRT 747-284-3003, cgalvan@alsagoldenwest.org mailto:cgalvan@alsagoldenwest.org
Palo Alto – ALS Online Support Group Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsagoldenwest.org mailto:ssonnicksen@alsagoldenwest.org
SAN FRANCISCO COUNTY ALS SUPPORT GROUP 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Taheerah Mujahid, 510-695-2797; tmujahid@alsagoldenwest.org mailto:tmujahid@alsagoldenwest.org
JOHN GILL CENTRAL COAST - ALS SUPPORT GROUP 2:00 - 4:00 PM Contact Julie for information on how to participate using Zoom! Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@als mailto:jscurich@alsagoldenwest.org
San Francisco and Surrounding Areas Weekly Online Huddle with Taheerah Mindfulness, Connection and Perspective Weekly Huddle. This support group is designed for people living with ALS who are on my caseload as a means to check-in for care management services. We use this virtual platform to check-in weekly for care management services while using mindfulness,…
Hora Social del Mes de la Herencia Hispana / Hispanic Heritage Month Social Hour Hola. Que pasa? Como estas? Quieres pasar un rato con algunas personas increibles? Quiere conocer a otras personas hispanas que viven con ELA(ALS) y estan afectadas por ella? Nos alegra que nos haya encontrado! I AM ALS y el grupo Comunidades De…