The story of the Les Turner ALS Foundation begins with one man’s ALS diagnosis in 1976. Les Turner, a Chicago area businessman, husband and father, was frustrated by the lack of local resources available to manage the devastating effects of his diagnosis. His family and friends supported his desire to provide support to others affected by the disease with the resources and hope for a cure unavailable to him. In doing so, they inspired his legacy.
For over forty years, the Les Turner ALS Foundation has been Chicagoland’s leader in research, patient care and education about ALS.
During this webinar, the presenters will be discussing symptoms of mobility weakness and how ALS affects mobility. You will learn about a variety of mobility aids to assist you in your daily life and learn what information is important to know when modifying your home for use of a power wheelchair. You will learn about…
Making Activities of Daily Life Easier in ALS - Thursday, March 17, 2022 from Noon to 1:00pm CT About the Program: This webinar will focus on how ALS may impact your daily routines and how an occupational therapist can offer tips to make daily living a little easier. You will learn about devices for getting through…
Thursday, April 28, 2022 from Noon to 1:00pm CT About the Program: Are you a veteran living with ALS? Need help navigating the Veterans Administration system and don’t know where to start? Hear from Robert Statam, Sr. and Winston Woodard III of the Paralyzed Veterans of America (PVA) who specialize in providing navigation services for…
About the Program: This webinar will guide people living with ALS and their loved ones through easy-to-understand actionable steps for securing a financial future and optimizing health care. A diagnosis of ALS makes planning for the future more important than ever. These discussions are not easy, but taking the time to gather information and think…
About the Program Many people living with ALS qualify for Medicare to provide their health insurance after they are no longer working full-time. This presentation will examine Medicare eligibility, enrollment, coverage, costs, assistance paying for costs, and considerations when choosing between traditional Medicare and a private Medicare advantage plan. Questions, answers and discussion will follow…
We are excited to announce the 2nd annual SIL Golf Outing benefiting the Les Turner ALS Foundation! Hosted by the Strategic Introduction League (SIL), we are proud to announce that at our inaugural event in 2021, we were able to raise over $3,000 for the Les Turner ALS Foundation. Come show your support this year as…
Integrative holistic therapies can play a major role in helping people feel better, especially when they are dealing with neurologic diseases. This month’s ALS Learning Series, "Complementary and Alternative Therapies for People Living with ALS and Caregivers," taking place on Thursday, July 14 from 12 – 1 p.m. (CT), will discuss how people living with…
2022 Strike Out ALS 5k and 1 Mile Run, Walk & Roll We race towards more than a finish line, we race towards a CURE. Join us for this year's Strike Out ALS 5k and 1 Mile Run, Walk & Roll which will be held in-person at Guaranteed Rate Field on Thursday, July 21, 2022.…
9th Annual Matt Creen Golf Invitational Thursday, August 11, 2022 Odyssey Country Club 19110 S Ridgeland Ave Tinley Park, IL 60477 Registration and Driving Range: 9 am Shotgun Start: 10:45 am Open Bar: 4-8 pm Dinner: 5:30 pm Silent Auction and Raffle Throughout Dinner Matt Creen, General Counsel for the Currie Motors Group for 20…
About the Program: Have you ever thought about Voice or Message Banking, but don’t know where to start? Voice and message banking for people living with ALS can be an emotional, overwhelming, and seemingly complicated task to navigate. However, it doesn’t have to be. Anne Marie will discuss the differences between voice banking, message banking,…
About the Program With the advancement of technology and home automation systems, tasks that were previously difficult for people living with ALS, such as turning the lights on and off in your home, have become much easier. Team Gleason’s mission is to have people living with ALS remain as independent as possible no matter where…
Join our Les Turner ALS family this year for Chicagoland’s largest gathering of people living with ALS and their friends and family! Teams fundraise in honor or memory of a loved one living with ALS and gather in a day full of celebration, hope, and courage. With food, music, and children’s activities, the day is…
About the Program: Caregivers undergo changing dynamics and burnout when caring for a loved one. It’s important for others to maintain a more understanding and loving perspective so that they can cope effectively. Please join us on Thursday, October 6 from 12-1 p.m. (CT) for this month’s ALS Learning Series, “Navigating the Challenges of Caregiving…
Please join us on Saturday, Oct. 22 for the Les Turner ALS Foundation’s Celebration of Life. Led by Support Group Facilitator Anne Lidsky, PhD, this annual service honors those we have lost to ALS. It will be held online via Facebook Watch and recorded for those who cannot attend the live event. Join us for…
Join us for the 12th Annual Les Turner Symposium on ALS. At this symposium, you will hear from leading ALS scientists and clinicians who will discuss advances in ALS research and care. Individuals with ALS, as well as their family members and caregivers are welcome. Medical professionals who work with patients with ALS are also…
About the Program: Many people living with ALS struggle to understand whether it is OK to exercise, what kind of exercise is most beneficial, and whether exercise slows disease progression. Please join as, Hannah Redd PT, DPT, NCS, at Shirley Ryan AbilityLab, will discuss the benefits of exercise among people living with ALS along with…
About the Program: Join us for our January ALS Learning series with Dr. Paul Mehta to learn how the National ALS Registry helps advance research. Dr. Mehta will discuss how to join the National ALS Registry, what information they collect and why, and the type of research the registry is conducting. A Q&A session will…
This is an extraordinary moment in ALS care, research and discovery. Through the efforts of a fiercely determined group of ALS advocates, two new drugs were approved by the FDA to slow the progression of ALS over the last year. A record total of more than 4,000 people living with ALS, caregivers and families received…
About the Program A person living with ALS may not feel comfortable addressing relationship, intimacy and sexual health changes that occur during their ALS journey with their healthcare providers. Although their ALS care team is always there to help, they may not feel fully equipped to assist them. The good news is that there are…
Cognitive Changes in ALS - Thursday, March 23, 2023 12:00 - 1:00 p.m. CT About the Program Join us for our March ALS Learning Series discussing cognitive functions with Catherine Lomen-Hoerth, MD. She will provide an overview of ALS, including its causes and symptoms, and how it affects cognitive functioning. Dr. Lomen-Hoerth will cover the…
Title: ALS Exercise Date: Thu, Apr 20, 2023, 12:00 PM - 1:00 PM CDT Registration link: https://attendee.gotowebinar.com/register/3042676758300304988 About the Program: Many people living with ALS struggle to understand whether it is OK to exercise, what kind of exercise is most beneficial, and whether exercise slows disease progression. Please join as, Hannah Redd PT, DPT, NCS, at…
About the Program: The practice of genetic testing in ALS has been impacted by high patient demand for testing, sponsored testing programs, and a new drug application to the FDA for the first gene-targeted therapy in ALS. However, many challenges exist, including few genetic counselors in ALS clinics, and issues with laboratory methods and reporting. Jennifer…
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
Date/Time: Monday, June 19, 2023, at 12:00 p.m. CST Registration Link: https://attendee.gotowebinar.com/register/4658833508087010396 About the Program: Not everyone with ALS will need or choose to have a tracheostomy, but there may come a time when it’s necessary for continued breathing. You may have respiratory weakness that can no longer be treated with a mask and non-invasive ventilation.…
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
An open, supportive monthly bereavement group for anyone (family, friend, etc.) who has lost a loved one to ALS within the past year. This group will provide a place to connect with others who have experienced the loss of a loved one to ALS; stories will be told, feelings will be explored, and information will…
The Caregivers Only group offers a time to talk about all the issues caregivers face in a non-judgmental, accepting atmosphere without their loved one, who is living with ALS, being present. Caregivers share a common experience; life has become so tumultuous that they often feel exhausted and overwhelmed, hungry for emotional comfort. Together, with the…
Meets the Third Tuesday of each month from 1 – 2:30pm Facilitator: Anne Lidsky, PhD Visit: https://lesturnerals.org/support-services/support-groups-education/ to sign up. *Meetings will be held over Zoom and a Zoom invitation will be sent via email once you register for the group.*
Join us for our July ALS Learning Series with Dr. Senda Ajroud-Driss, neurologist and director of the Lois Insolia ALS Clinic at the Les Turner ALS Center at Northwestern Medicine. She’ll discuss updates in ALS clinical research, provide information on trials that are currently recruiting, and review inclusion criteria, with a Q & A to…
