Wheaton Support Group

Marianjoy Rehab Center 26 W Roosevelt Rd, Wheaton, IL, United States

Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

Rooney Family Memorial Support Group – Far South Side

Saint Xavier University 801 W University Ln, Chicago, IL, United States

Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN and Easton Stevenson, LCSW RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

Les Turner ALS Foundation ALS Learning Series: Clinical Trials 101

Virtual

Clinical Trials 101 featuring Benjamin Joslin, CCRC, Clinical Research Project Manager, Northwestern University Feinberg School of Medicine Tuesday, December 8 12pm CST Please join us for our second ALS Learning Series webinar, Clinical Trials 101, featuring Benjamin Joslin, CCRC, clinical research project manager with Northwestern University’s Feinberg School of Medicine on Tuesday, December 8, at 12pm…

My ALS Communication Passport to Quality Care with Karen Steffens, RN, CHPN, CCM

My ALS Communication Passport to Quality Care is a tool for individuals living with ALS and their families. The 12-page Passport document, which is available in hard copy and online, helps nursing, medical staff and caregivers better understand the care needs and preferences of people living with ALS. For the person diagnosed with ALS, this…

Rooney Family Memorial Support Group – Far South Side

Saint Xavier University, Shannon Center 2nd floor conference room, Saint Xavier University, Shannon Center 2nd floor conference room, Chicago, IL, 60655, United States

Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

Barrington Support Group

Journey Care Hospice – Pepper Family House, 405 Lake Zurich Road, Barrington, IL, 60010, United States

Meets the Second Saturday of each month from 10:30am – 12:30pm Time: 10:30am – 12pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

Chicagoland Area Support Group

Virtual

Time: 1pm – 2:30pm Facilitator(s): Ileane Mindel, RN and Anne Lidsky, PhD. RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

Chicago Virtual NEALS ALS Clinical Research Learning Institute

Virtual

Become an ALS Research Ambassador Join our first-ever 2021 Chicago Virtual NEALS ALS Clinical Research Learning Institute (CRLI) online on February 20-21! The ALS CRLI is an annual two-day program dedicated to educating attendees on clinical research and therapy development and empowering this group to be advocates for ALS clinical research. Certification as an ALS…

Les Turner ALS Learning Series: Coping with the Loss of a Loved One During COVID-19

Virtual

Coping with the Loss of a Loved One During COVID-19, with Nicole Sammartino, MS, & Easton Stevenson, LCSW Coping with the loss of a loved one is hard. It’s especially challenging during a global pandemic. Over the past 44 years, we have made it a priority at the Les Turner ALS Foundation to honor people…

Wheaton Support Group

Marianjoy Rehab Center, 26 W 171 Roosevelt Road, Wheaton, IL, 60187, United States

Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

ALS Learning Series: Talking with Children about ALS

Virtual

        Featuring Melinda Kavanaugh, PhD, MSW, LCSW, Associate Professor, Social Work and Director in Social Welfare at the Helen Bader School of Social Welfare at the University of Wisconsin-Milwaukee Despite the growing focus on people living with ALS and their adult caregivers, children and youth caregivers, or “young caregivers,” remain the most hidden…

Les Turner ALS Learning Series: Grief and Loss in Children and Youth in Families Living with ALS

Virtual

Our March webinar focused on talking with children about ALS. In April, we shift the discussion to how children cope with grief and loss. This webinar integrates Dr. Kavanaugh’s clinical expertise and many years of research with children and youth in families with neurological disorders, to guide families in starting the conversation about death and…

Barrington Support Group

Journey Care Hospice – Pepper Family House, 405 Lake Zurich Road, Barrington, IL, 60010, United States

Meets the Second Saturday of each month from 10:30am – 12:30pm Time: 10:30am – 12pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

Chicagoland Area Support Group

Virtual

Time: 1pm – 2:30pm Facilitator(s): Ileane Mindel, RN and Anne Lidsky, PhD. RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

Wheaton Support Group

Marianjoy Rehab Center, 26 W 171 Roosevelt Road, Wheaton, IL, 60187, United States

Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

Rooney Family Memorial Support Group – Far South Side

Saint Xavier University, Shannon Center 2nd floor conference room, Saint Xavier University, Shannon Center 2nd floor conference room, Chicago, IL, 60655, United States

Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

Barrington Support Group

Journey Care Hospice – Pepper Family House, 405 Lake Zurich Road, Barrington, IL, 60010, United States

Meets the Second Saturday of each month from 10:30am – 12:30pm Time: 10:30am – 12pm Facilitator(s): Karen Raley Steffens, RN, CHPN, CCM RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

Chicagoland Area Support Group

Virtual

Time: 1pm – 2:30pm Facilitator(s): Ileane Mindel, RN and Anne Lidsky, PhD. RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

ALS Learning Series: Take a Breath, Respiratory Support in ALS

Virtual

In our May webinar, Dr. Coleman will be discussing respiratory support in ALS including non-invasive and invasive ventilation. About the Presenter: John M. Coleman III, MD. Associate Professor of Medicine and Neurology, Northwestern Medicine. Thu, May 20, 2021 12:00 AM - 1:00 PM CDT Register Here

Wheaton Support Group

Marianjoy Rehab Center, 26 W 171 Roosevelt Road, Wheaton, IL, 60187, United States

Meets the Fourth Saturday of each month from 10:30am-12pm Time: 10:30am – 12pm Facilitator(s): Ileane Mindel, RN, Julie Stowell, RN, CHPN and Elsa Cherwak, PT RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

Rooney Family Memorial Support Group – Far South Side

Saint Xavier University, Shannon Center 2nd floor conference room, Saint Xavier University, Shannon Center 2nd floor conference room, Chicago, IL, 60655, United States

Meets the First Thursday of each month from 6:30pm-8pm Facilitator(s): Ileane Mindel, RN RSVP: Please email us at supportgroup@lesturnerals.org to RSVP

ALS Learning Series: Dissecting ALS Research Articles

Virtual

Dissecting ALS Research articles, with Colin Franz, MD, PhD, Assistant Professor in Physical Medicine and Rehabilitation and Neurology, Shirley Ryan AbilityLabs and Northwestern University. Current treatments for Amyotrophic Lateral Sclerosis (ALS) are lacking, but more are the horizon. Naturally we look to new ALS research studies for hope and solutions, but the information in scientific…

ALS Learning Series: Managing Speech and Swallowing Problems in ALS

Virtual

About the Program: This webinar will discuss various ways ALS can impact your speech and swallowing. We will focus on early identification of symptoms, provide helpful tips including tongue and respiratory exercises along with voice banking and communication aid options. Knowing what to expect as your symptoms change can help you make well-informed and timely…

The Les Turner ALS Foundation™ ALS Walk for Life – 20th Anniversary

Soldier Field 1410 S Museum Campus Drive, Chicago, IL, United States

Join us for the 20th anniversary ALS Walk for Life on September 18,  either at Soldier Field or remotely. People living with ALS need you now more than ever. Saturday, September 18, 2021 Soldier Field in Chicago, IL 9:30am Festivities Begin 11:00am Walk kicks off Register Here

ALS Learning Series: Designing a Toolbox for Continuous Communication with Your Existing Technology

Virtual

This webinar will identify solutions for communication and use of smart phones, tablets, and computers as ALS can affect your speech and ability to use these devices. This course will focus on making communication as easy as possible throughout this difficult journey, using cutting-edge technology and collaboration with each person’s team including their family, caregivers, therapists,…

ALS Learning Series: Family Planning and ALS

Virtual

The decision to have genetic testing for a familial ALS gene is important and may have implications for those interested in starting a family. This talk will review family planning options available to individuals to reduce the risk of passing on a genetic disorder. We'll review what is involved in each option as well as…

11th Annual Les Turner Symposium on ALS

Save the date for the 11th Annual Les Turner Symposium on ALS on Monday, November 8, 2021. The Symposium features presentations from leading ALS clinicians and researchers, including members of our Lois Insolia ALS Clinic at our Les Turner ALS Center at Northwestern Medicine.

ALS Learning Series: Hospice & Palliative Care for People with ALS

Virtual

Join this Hospice and Palliative Care webinar to learn how to talk with your loved ones about ALS end-of-life care, what to say, and most importantly, when to say it. These conversations can lower anxiety, reduce apprehension, and improve quality of life. This online webinar is right for you even if end-of-life care remains a…

ALS Learning Series: Empowering You to Take Control of Your ALS Care

Virtual

During this webinar, you will learn how to use the new My ALS Decision Tool™. This groundbreaking decision tool is a web-based, interactive series of questions and considerations which can help you take control of your ALS care. My ALS Decision Tool™ adds a component of dignity, autonomy and self-determination that is vital to overall…